Telephone
helpline offering
advice and support to parents of
children born without eyes or with under-developed eyes.
Macular Group meets 4th Wednesday each month at 1pm. Tesco Community Centre, Park Avenue, Aberystwyth.
Support group for people with
macular disease. Meets at Sight Life monthly on the first Monday of the month. 10.30am - 12.30pm. Sight Life, Jones Court, Womanby Street, Cardiff CF10 1BR. Contact Sightlife.
Meets on 3rd Monday in the month at 1.30pm. Hafod y Park, Abergele, Conwy.
Second Thursday of the month, 10.30am at Llandybie Public Memorial Village Hall Llandybie Ammanford.
Second Monday of the month 10.00am at Brecon Town Council Offices (rear entrance), The Guildhall, Brecon, Powys LD3 7AL. Contact Tina.
Bridgend – Third Friday of the month 10.30am at Halo Bridgend Life Centre, Angel St, Bridgend CF31 4AH. Contact Joy.
Third Wednesday of the month at 10.30am at Caerphilly Library, 2, The Twyn, Caerphilly, CF83 1JL, in the reading room. Contact Denise.
Meet on 2nd Tuesday of the Month. 10.30am - 12.30pm at Radley Room, The Guildhall, Cardigan SA43 1JL. Contact Monica on 07726 569818.
Fourth Thursday of the month 10.30am at Yr Atom, 18 Stryd y Brenin, Caerfyrddin SA31 1BH; contact Janice.
Support group for people with
macular disease. Meets on 3rd Wednesday of every month, at 1.30pm. Theatre Fach, Dolgellau, Gwynedd.
Second Wednesday of the month, 2pm, at St Thomas Methodist Church, 7 St Thomas St, Lampeter SA48 7DQ. Contact Diana.
Group meets 4th Thursday each month at 1.30pm. Llanbedr Community Hall, Llanbedr, Gwynedd.
Support group for people with
Macular disease. Meets monthly, on first Monday of the month at 11am. Craig y Don Community Centre, Llandudno.
Third Wednesday of the month 10am at The Lantern Centre Hall Street Church Llanelli SA15 3BB. Contact Adele.
Support group meets 4th Monday of every month at 11am. The Hand Hotel, Llangollen, Denbighshire.
First Thursday of the month, 2pm at Milford Haven Library, Cedar Court, Haven's Head Business Park, Milford Haven, Pembrokeshire. Contact Maddy.
First Thursday of the month, 2pm Wyesham Christian Fellowship, Chapel Close, Wyesham, Monmouth NP25 3NN contact David on 07951 869 586
Neath – Fourth Tuesday of the month, 1pm at Neath Library, Water St, Neath SA11 3EP. Contact Carole.
First Monday of the month at 1pm at the Salvation Army Hall, 1 Hill Street, Kingsway Centre, Newport NP20 1LZ. Contact Caroline.
Support group meets 1st Monday each month at 2pm. MCRA,
Plas Dolerw, Milford Road, Newtown, Powys.
First Friday of every month at 10.30 am at Treorchy Library, Station Road, Treorchy CF42 6NN. Contact Jean Bently.
First Wednesday of the month 2pm at The Pavillion, 52 Lanelay Road, Talbot Green, Pontyclun, CF72 8HY contact Julie Parker 07531 498 967
Meet on every 2nd Thursday of the month. 11 am at Canolfan Naylor Leyland Centre, Ruthin.
Last Wednesday of the month at 2pm at St Davids Rugby
Club, Nun Street, St. Davids, Haverfordwest SA62 6BP. Contact Margaret Hughes.
Bi-Monthly (Jan, March, May, July, Sept, Nov) First Thursday of the month 11.30am at the Grand Theatre Conservatory, Singleton St, Swansea SA1 3QJ contact Kate on 01792 401 450
Last Thursday of the month, at 2pm, Community Centre, Augustus Place, Tenby, Wales, SA70 7DJ. Contact Adele.
Meets 1st Tuesday of every month at 11 am. Neuad Pendre, Tywyn, Gwynedd.
Fourth Monday of the month at 10.30am at Welfare Hall, Lesser hall, Brecon Road, Ystradgynlais SA9 1JJ. Contact Cilla.
About
macular disease; diagnosis and treatment; how is macular disease diagnosed?; what to do after diagnosis; treatments; navigating the healthcare system; support for you; get involved; research; professionals; who we are; work with us; shop;
advice and information.
All Wales telephone calls to help those who are unable to make it to meetings in person. These will take place on: First Wednesday of the Month 11am – 12pm - English and Welsh speaking.
It is not unusual for some people with
macular disease to feel isolated, especially if it's difficult to get out and about. However, there is no need to feel alone - MS telephone befrienders can provide a regular friendly phone call, which may help to rebuild confidence and independence. Their telephone
befriending service may be especially helpful if you cannot get to one of their
support group meetings, but would like to talk to someone who has experience of macular disease.
The
Macular Society can put you in touch with a Treatment Buddy who has already had treatment, for information and reassurance. If you are experiencing visual hallucinations (
Charles Bonnet Syndrome) due to sight loss there is a buddy service where you can talk to someone who has also experienced visual hallucinations for information and reassurance.
Macular Society has a team of qualified counsellors who have extensive experience either personally or professionally within the field of sight loss. This is a telephone service for anyone who has been diagnosed with macular disease. They also offer the same service to that person’s family members, in the UK or internationally.
They are bound by the BACP (British Association of Counselling and Psychotherapy) Ethical Framework for Good Practice in Counselling, and fully compliant with the Data Protection Act.
The
Macular Society has local self-help
support groups across the UK. The groups vary in size and style but all offer invaluable practical and emotional support to people with macular disease from people with macular disease. Click the link below and enter your postcode to find the group near you.
Aimed at individuals with
sight impairments and
additional learning needs and founded in honour of UCAN Board Member, Dr Margaret Woodhouse OBE, known to everyone as Maggie. This once a month event is full of fun, drama, games, sound workshops and arts and crafts. 2:00pm-3:30pm at School of
Optometry and Vision Science, Cardiff University, Maindy Rd, Cardiff. For more information and to book a place please contact Enireth.
Managing Better is a free, cross-tenure, home visiting service offering practical help for
older people with sensory loss, dementia, or who have had a stroke. Their dedicated Managing Better Caseworkers will visit your home and provide vital information and practical help to enable you to live as freely and safely as possible. They can provide adaptations to your home that are necessary if you are suffering from sight loss, hearing loss, dementia or have had a stroke.
Provides information and a range of literature about
Marfan syndrome. Members are also invited to various events organised by the association. There is a range of membership options. The basic 'Friends Membership' (which gives access to the
helpline, all online & social media resources & all standard e-news articles), is free.
Disabled and
Deaf artists, as members of Disability Arts Cymru, have access to information,
advice and support throughout Wales.
VI/
Deaf-blind men of all ages meet every 6 weeks in Wetherspoons Maesteg 2-4pm. Contact Sandy Davies,
Rehabilitation Officer, for forthcoming dates.
Part time
ECLO based at Prince Charles Hospital, Merthyr. Provides emotional support, often at a time of great need. Also signposts patients on to the many different services to help maintain their independence. The role of ECLO helps to bridge the gap between health and
social care services for blind and partially sighted people.
Direct Payments enable people assessed as requiring
Social Care services to purchase their own care and support. Merthyr uses Dewis CIL to manage DP.
Council page on library services in Merthyr Tydfil CBC.
Merthyr Tydfil Council as a member of staff qualified to provide mobility
training to
vi children in a school environment. The contact is Lisa Beattie.
A
VRS assists someone regain skills they may have lost through sight problems and helps them re-learn to do things they could previously do for themselves.
From Dyslexia to Arthritis, to visual and hearing losses, whatever the condition, Microlink can assess, advise, supply, train and support anyone looking to break down a barrier caused by their conditions.
Formerly run by Vision Support. Contact Wales Council of the Blind for current status.
An online resource dedicated to supporting people who become ill or
disabled. The site offers a range of practical tips and free impartial
advice to help people better understand their money matters when faced with a life-changing event such as
a long-term health condition or disability.
A social group that meets locally and enjoy talks, activities, speakers,
outings, refreshments and other entertainment. The group meets on alternate Thursdays at Wyesham Christian Fellowship between 1.30 – 3.30pm.
Direct Payments enable people assessed as requiring
Social Care services to purchase their own care and support. Direct Payments in Monmouthshire are managed by GAVO.
Council page on library services in Monmouthshire.
A Vision
Rehabilitation Specialist (VRS) assists someone regain skills they may have lost through sight problems and helps them re-learn to do things they could previously do for themselves. Note: Monmouthshire's VRS only works with
vision impaired adults.
If you’re in Year 6 and you want to share your thoughts and chat to others who, like you, will be moving to Year 7 in September, then why not join our Moving on Up Group! As well as the other
young people, our Family Practitioners will be on hand to answer your questions and help you work through the move. This Group will give you the chance to talk about your thoughts and feelings, help you work through them and help boost your confidence before September! The sessions are fun, and enjoyable but they will also offer you a safe space to talk to others and to the RSBC’s Family Practitioner.
Mumbles Methodist Church, Mumbles Road, Mumbles, Swansea. 1.30 - 3.30 pm, 3rd Monday of the month.
Our
Music Appreciation group usually meets at Jones Court on the second Wednesday of the month between 2.00pm and 3.30pm. Our volunteer Derek puts together pieces of music for members to listen to - anything from classical pieces to big band music - and
referral-service-pears">prepares a narrative to accompany each piece, as discussion points.
Music in Mind aims to enable blind or partially sighted
children with neurodegenerative disease to engage with music by providing families and professionals with resources and ideas for music-making.
The 'My Guide' scheme is a partnership between
Guide Dogs and community organisations, which helps people with sight loss get out of their homes and back into the community. My Guide aims to reduce the isolation that many people with sight loss experience, helping to rebuild their confidence and regain their independence.
Every month
Macular Society hosts two webinars to bring you closer to the experts. You will be joined by experts in macular disease who discuss the latest in treatments and research and answer your questions.
My Sound Cinema is the first online cinema dedicated to audio described content and designed for the
visually impaired community.
