Wales Council of the Blind

Macular Degeneration

Definition: Loss of central vision due to damage to the macular. Most common in older people (AMD) but can occur in younger people.

Category: eye condition

Credit: Macular Disease Society


Services mentioning Macular Degeneration

Macular Group - Cardiff - (Sight Life) Support Group

Support group for people with macular disease. Meets at Sight Life monthly on the first Monday of the month. 10.30am - 12.30pm. Sight Life, Jones Court, Womanby Street, Cardiff CF10 1BR.

Macular Group - Dolgellau - (Macular Society) Support Group

Support group for people with macular disease. Meets on 3rd Wednesday of every month, at 1.30pm. Theatre Fach, Dolgellau, Gwynedd.

Macular Group - Llandudno - (Macular Society) Support Group

Support group for people with Macular disease. Meets monthly, on first Monday of the month at 11am. Cae Mor Hotel, 6 Penrhyn Crescent, Llandudno.

Macular Society Advice and Information Line - (Macular Society) Helpline

About macular disease; diagnosis and treatment; how is macular disease diagnosed?; what to do after diagnosis; treatments; navigating the healthcare system; support for you; get involved; research; professionals; who we are; work with us; shop; advice and information.

Macular Society Befriending - (Macular Society) Befriending

It is not unusual for some people with macular disease to feel isolated, especially if it's difficult to get out and about. However, there is no need to feel alone - MS telephone befrienders can provide a regular friendly phone call, which may help to rebuild confidence and independence. Their telephone befriending service may be especially helpful if you cannot get to one of their support group meetings, but would like to talk to someone who has experience of macular disease.

Macular Society buddies - (Macular Society) Befriending

The Macular Society can put you in touch with a Treatment Buddy who has already had treatment, for information and reassurance. If you are experiencing visual hallucinations (Charles Bonnet Syndrome) due to sight loss there is a buddy service where you can talk to someone who has also experienced visual hallucinations for information and reassurance.

Macular Society Counselling Service - (Macular Society) Counselling and emotional support

Macular Society has a team of qualified counsellors who have extensive experience either personally or professionally within the field of sight loss. This is a telephone service for anyone who has been diagnosed with macular disease. They also offer the same service to that person’s family members, in the UK or internationally. They are bound by the BACP (British Association of Counselling and Psychotherapy) Ethical Framework for Good Practice in Counselling, and fully compliant with the Data Protection Act.

Macular Society local support groups - (Macular Society) Support Group

The Macular Society has local self-help support groups across the UK. The groups vary in size and style but all offer invaluable practical and emotional support to people with macular disease from people with macular disease. Click the link below and enter your postcode to find the group near you.

Macular Society online condition-specific communities - (Macular Society) Support Group

The Macular Society has groups which are specific to particular types of macular disease: Best's disease, diabetic macular oedema, myopic macular degeneration, punctate inner choroidopathy (PIC), and Sorsby's fundus dystrophy. Each group meets monthly. They are an opportunity to find out more about the condition, and meet others who are affected.

My Macular and Me Webinars - (Macular Society) Information

Every month Macular Society hosts two webinars to bring you closer to the experts. You will be joined by experts in macular disease who discuss the latest in treatments and research and answer your questions.

Online training for healthcare professionals - (Macular Society) Training

The Macular Society is developing a range of online training modules which will give healthcare professionals a greater understanding of central vision loss.

Welshpool and District VI Club - (Welshpool and District Visual Impairment Club) Clubs and social groups

Social and entertainment group for persons who are vision impaired and carers. Outings and speakers, general chat and company. Meetings are held at the Methodist Church, High Street, Welshpool on alternate Tuesdays between the hours of 2 - 4pm. from March - December. The club is run by a small group of people who give their time freely. Raffle event every meeting towards cost of refreshments and use of hall. Affiliated with Macular Society.

Working Age and Young People Connect by Tech Groups - (Macular Society) Access technology

Macular Society's Connect by Tech service offers one-to-one telephone support with the technology you are using around your home. Make the most of you smart phones, tablets, laptops and computers, smart speakers, and other technology. Help with setting up Alexa, using accessibility features on devices, help with video calls, setting up a computer, Zoom and conference calls and more. Zoom meeting on the fourth Friday of the month 10.30am

Working Age Focus Webinars - (Macular Society) Employment Support

This webinar, which takes place on the last Thursday of every month, focuses specifically on different macular conditions and issues affecting anyone of working age.

Library records mentioning Macular Degeneration

Commissioning better eye care - Age related macular degeneration Guidance - [Library Type]

Clinical commissioning guidance from The College of Optometrists & The Royal College of Ophthalmologists, which aims to to help those designing and commissioning eye care improve the value of their services for people with age-related macular degeneration.

Macular degeneration Leaflet - [Library Type]

Information about the symptoms and treatment of macular problems.

Macular Society Newsletters (Wales) Newsletter - [Library Type]

Macular Society offers services and support in Wales. These newsletters inform readers of what's available. There are North Wales and South Wales editions in most instances.

Your guide to juvenile macular dystrophies Guidance - [Library Type]

This guide to juvenile macular dystrophies (JMD) provides information about several conditions, (including Stargardt's disease, Best disease, surbus fundus dystrophy and cone dystrophy), guidance on living with them, and places to find further support.