Macular Degeneration
Definition: Loss of central vision due to damage to the macular. Most common in older people (AMD) but can occur in younger people.
Category: eye condition
Credit: Macular Disease Society
Source:
https://www.macularsociety.org/age-related-macular-degeneration-0
Last Updated: 11th of June 2024
Services mentioning Macular Degeneration
Macular Group meets 4th Wednesday each month at 1pm. Tesco Community Centre, Park Avenue, Aberystwyth.
Support group for people with
macular disease. Meets at Sight Life monthly on the first Monday of the month. 10.30am - 12.30pm. Sight Life, Jones Court, Womanby Street, Cardiff CF10 1BR. Contact Sightlife.
Support group for people with
macular disease. Meets on 3rd Wednesday of every month, at 1.30pm. Theatre Fach, Dolgellau, Gwynedd.
Support group for people with
Macular disease. Meets monthly, on first Monday of the month at 11am. Craig y Don Community Centre, Llandudno.
About
macular disease; diagnosis and treatment; how is macular disease diagnosed?; what to do after diagnosis; treatments; navigating the healthcare system; support for you; get involved; research; professionals; who we are; work with us; shop;
advice and information.
It is not unusual for some people with
macular disease to feel isolated, especially if it's difficult to get out and about. However, there is no need to feel alone - MS telephone befrienders can provide a regular friendly phone call, which may help to rebuild confidence and independence. Their telephone
befriending service may be especially helpful if you cannot get to one of their
support group meetings, but would like to talk to someone who has experience of macular disease.
The
Macular Society can put you in touch with a Treatment Buddy who has already had treatment, for information and reassurance. If you are experiencing visual hallucinations (
Charles Bonnet Syndrome) due to sight loss there is a buddy service where you can talk to someone who has also experienced visual hallucinations for information and reassurance.
Macular Society has a team of qualified counsellors who have extensive experience either personally or professionally within the field of sight loss. This is a telephone service for anyone who has been diagnosed with macular disease. They also offer the same service to that person’s family members, in the UK or internationally.
They are bound by the BACP (British Association of Counselling and Psychotherapy) Ethical Framework for Good Practice in Counselling, and fully compliant with the Data Protection Act.
The
Macular Society has local self-help
support groups across the UK. The groups vary in size and style but all offer invaluable practical and emotional support to people with macular disease from people with macular disease. Click the link below and enter your postcode to find the group near you.
Every month
Macular Society hosts two webinars to bring you closer to the experts. You will be joined by experts in macular disease who discuss the latest in treatments and research and answer your questions.
The
Macular Society is developing a range of online
training modules which will give healthcare professionals a greater understanding of central vision loss.
Social and entertainment group for persons who are
vision impaired and
carers.
Outings and speakers, general chat and company. Meetings are held at the Methodist Church, High Street, Welshpool on alternate Tuesdays between the hours of 2 - 4pm. from March - December. The
club is run by a small group of people who give their time freely. Raffle event every meeting towards cost of refreshments and use of hall. Affiliated with
Macular Society.
Macular Society's Connect by Tech service offers one-to-one telephone support with the
technology you are using around your home. Make the most of you
smart phones, tablets, laptops and computers, smart speakers, and other technology. Help with setting up Alexa, using accessibility features on devices, help with video calls, setting up a computer, Zoom and conference calls and more. Zoom meeting on the fourth Friday of the month 10.30am
This webinar, which takes place on the last Thursday of every month, focuses specifically on different
macular conditions and issues affecting anyone of working age.
Library records mentioning Macular Degeneration
Clinical commissioning guidance from The College of
Optometrists & The Royal College of Ophthalmologists, which aims to to help those designing and commissioning eye care improve the value of their services for people with age-related
macular degeneration.
Information about the symptoms and treatment of
macular problems.
Macular Society offers services and support in Wales. These newsletters inform readers of what's available. There are North Wales and South Wales editions in most instances.
This guide to juvenile
macular dystrophies (JMD) provides information about several conditions, (including
Stargardt's disease, Best disease, surbus fundus dystrophy and cone dystrophy), guidance on living with them, and places to find further support.
