Definition: Formal or informal group aiming to assist each other in overcoming problems and to share experiences.
Services mentioning Support group
Local support group
s in-person and online. For groups in Wales contact Rachel below for more information.
The Fuchs' Friends international online support group
is a place of support and information for people with all types of Corneal Dystrophy
. It is an outreach project of The Corneal Dystrophy Foundation. We are here to provide Education and Support regarding Corneal Dystrophies. We are here to help people who, when diagnosed, are sent on an emotional roller coaster ride caused by shock of the diagnoses and fear of the unknown future of their vision.
UK organises patient support group
s across the UK. The concept of the groups is to allow patients to meet their health care professionals in a relaxed atmosphere, away from the time restricted atmosphere on outpatients, so the condition and treatment can be discussed in more depth. The weblink below gives details and contact points.
for people with macular
disease. Meets at Sight Life monthly on the first Monday of the month. 10.30am - 12.30pm. Sight Life, Jones Court, Womanby Street, Cardiff CF10 1BR.
for people with macular
disease. Meets on 3rd Wednesday of every month, at 1.30pm. Theatre Fach, Dolgellau, Gwynedd.
for people with Macular
disease. Meets monthly, on first Monday of the month at 11am. Cae Mor Hotel, 6 Penrhyn Crescent, Llandudno.
meets 4th Monday of every month at 11am. The Hand Hotel, Llangollen, Denbighshire.
meets 1st Monday each month at 2pm. MCRA, Plas
Dolerw, Milford Road, Newtown, Powys.
It is not unusual for some people with macular
disease to feel isolated, especially if it's difficult to get out and about. However, there is no need to feel alone - MS telephone befrienders can provide a regular friendly phone call, which may help to rebuild confidence and independence. Their telephone befriending service
may be especially helpful if you cannot get to one of their support group
meetings, but would like to talk to someone who has experience of macular disease.
Society has local self-help support group
s across the UK. The groups vary in size and style but all offer invaluable practical and emotional support to people with macular disease from people with macular disease. Click the link below and enter your postcode to find the group near you.
for people from a minority (BME)
community who have sight loss, or care for someone with sight loss. The group meets on a monthly basis to share experiences, learn new things and suggest ways of improving services.
for people from an ethnic minority community who have sight loss, or care for someone with sight loss. The group meets twice a month, once in Newport and once in Cardiff, to share experiences, learn new things and suggest ways of improving services.
Library records mentioning Support group
The newsletter of the CHARGE
Family Support Group
gives information to families and carer
s of individuals with CHARGE Syndrome.