Wales Council of the Blind

Service type: Support Group

Albinism Fellowship - (Albinism Fellowship)

Provides a website resource, on-line discussion forum and telephone support for people affected by albinism.

Alstrom syndrome support group - (Alstrom Syndrome UK)

Provides support for those affected by Alström Syndrome, their carers and professionals working with them. This includes a forum, help with gaining access to medical assessments with doctors who have expertise in Alström Syndrome, quarterly medical screening clinics and a newsletter.

Aniridia support - (Aniridia Network)

Aniridia Network provides a positive, supportive network of families, individuals and professionals in order to share ideas, experiences and give emotional support. It provides information to health professionals, patients and their families, about aniridia, the related conditions and their implications for the patient.

BBS support - (Bardet-Biedl Syndrome UK)

BBSUK can help by putting you in touch with other families who are facing similar problems, by passing on advice which has helped others in the day to day management of thieir children, and by sending information which will help professionals in medical and educational fields to understand more about our special children.

Behcets Local Support Groups - (Behcet's UK)

Local support groups in-person and online. For groups in Wales contact Rachel below for more information.

Birdshot Uveitis Society - (Birdshot Uveitis Society (BUS))

BUS supports patients with uveitis">Birdshot, particularly when first diagnosed and provides up-to-date information about the condition and treatment options to help empower patients and ensure they have access to the most appropriate treatment possible.

Cerebral Visual Impairment meetings - (Cerebral Visual Impairment Society)

The Cerebral Visual Impairment Society hold an annual meeting which provides opportunities for parents, people with CVI and professionals to meet up and learn from each other in a mutually supportive environment.

CHARGE Family Support Group Events - (CHARGE Family Support Group)

The priority for the Group is to create opportunities to bring families together. If you are interested in attending an event or helping to organise one in your area, follow the link below.

Coats disease community - (Coats Disease Community)

An online community where people can discuss issues related to this condition.

Connecting Families - (Royal Society for Blind Children)

We hold monthly evening group sessions for parents and carers of vision impaired children and young people (0-25 years) which are facilitated by our team of RSBC Family Practitioners. It’s a supportive group where you will learn from the experiences of other parents and carers and in turn be able to support others with your own experiences and stories. Each month there will be a new topic covering many of the milestones and issues which parents and carers might face. It’s a safe place to share your feelings knowing others will support you. What to expect: Peer support; Empowering each other; Learning about and understanding mental health and well-being; Sharing knowledge and experience; Discussing the challenges of raising a child with a vision impairment; Open advice forum – no question is too big or too small.

Contact support groups in Wales - (Contact)

Groups provide parents of disabled children with essential practical and emotional support. Workshops and other events are organised.

Deafblind support - (Sense)

Specialist one-to-one support for deafblind people through both communicator guides and intervenors, and outreach support to children, families and deafblind adults in their own homes

Diabetes UK Cymru voluntary groups - (Diabetes UK)

The voluntary groups across Wales are run voluntarily by people living with diabetes. These groups can offer you local information and support and the opportunity to meet other people who live with diabetes.

Dystonia Society Forum - (The Dystonia Society)

An on-line forum where people can discuss any aspect of dystonia.

EYE CAN - (Sight Life)

Not currently running. Eye Can aims to provide social groups and activities for young visually impaired people, and to give them specialist support in a wide variety of areas including sight loss, health, education and training. The project is also providing workshops to local schools and colleges so that they are able to promote the service to their visually impaired students.

Fuch's Friends - (Corneal Dystrophy Foundation)

The Fuchs' Friends international online support group is a place of support and information for people with all types of Corneal Dystrophy. It is an outreach project of The Corneal Dystrophy Foundation. We are here to provide Education and Support regarding Corneal Dystrophies. We are here to help people who, when diagnosed, are sent on an emotional roller coaster ride caused by shock of the diagnoses and fear of the unknown future of their vision.

Glaucoma Support Groups - (Glaucoma UK)

Glaucoma UK organises patient support groups across the UK. The concept of the groups is to allow patients to meet their health care professionals in a relaxed atmosphere, away from the time restricted atmosphere on outpatients, so the condition and treatment can be discussed in more depth. The weblink below gives details and contact points.

Glaucoma UK Forum - (Glaucoma UK)

A on-line discussion forum for glaucoma patients and their families. The website also includes information about all aspects of glaucoma.

Keratoconus discussion forum - (UK Keratoconus Self Help & Support Association)

An on-line forum where people with an interest in the condition can raise and discuss issues.

LOOK Parent Support Group - (LOOK - National Federation of Families with Visually Impaired Children)

Come and meet other parents of Visually Impaired children every other Tuesday at 19:30GMT in our free online meet up sessions. (On Mondays from August 2023)

Macular Group - Aberystwyth - (Macular Society)

Group meets 4th Wednesday each month at 11am. The Marine Hotel, Aberystwyth.

Macular Group - Abergele - (Macular Society)

Meets on 3rd Monday in the month at 1.30pm. Hafod y Park, Abergele, Conwy.

Macular Group - Ammanford - (Macular Society)

Second Thursday of the month, 10.30am at Llandybie Public Memorial Village Hall Llandybie Ammanford. Contact Adele on 07494468007

Macular Group - Brecon - (Macular Society)

Second Monday of the month 10.30am at Brecon Town Council Offices (rear entrance), The Guildhall, Brecon Powys LD3 7AL. Contact Nick.

Macular Group - Bridgend - (Macular Society)

Bridgend – Third Friday of the month 10.30am at Halo Bridgend Life Centre Angel St, Bridgend CF31 4AH contact Joy on 07985 028 212

Macular Group - Caerphilly - (Macular Society)

Third Wednesday of the month at 10.30am at Caerphilly Library, 2, The Twyn, Caerphilly, CF83 1JL, in the reading room; contact Denise.

Macular Group - Cardiff - (Sight Life)

Support group for people with macular disease. Meets at Sight Life monthly on the first Monday of the month. 10.30am - 12.30pm. Sight Life, Jones Court, Womanby Street, Cardiff CF10 1BR.

Macular Group - Carmarthen - (Macular Society)

Fourth Thursday of the month 10.30am at Carmarthen Bowling Club, The Green, St. Peter's Car Park SA31 1QP; contact Janice.

Macular Group - Dolgellau - (Macular Society)

Support group for people with macular disease. Meets on 3rd Wednesday of every month, at 1.30pm. Theatre Fach, Dolgellau, Gwynedd.

Macular Group - Lampeter - (Macular Society)

Second Wednesday of the month 2pm at St Thomas Methodist Church, 7 St Thomas St, Lampeter SA48 7DQ; contact Diana.

Macular Group - Llanbedr - (Macular Society)

Group meets 4th Thursday each month at 1.30pm. Llanbedr Community Hall, Llanbedr, Gwynedd.

Macular Group - Llandudno - (Macular Society)

Support group for people with Macular disease. Meets monthly, on first Monday of the month at 11am. Cae Mor Hotel, 6 Penrhyn Crescent, Llandudno.

Macular Group - Llanelli - (Macular Society)

Third Wednesday of the month 10am at The Lantern Centre Hall Street Church Llanelli SA15 3BB. Contact Adele.

Macular Group - Llangollen - (Macular Society)

Support group meets 4th Monday of every month at 11am. The Hand Hotel, Llangollen, Denbighshire.

Macular Group - Maesteg - (Macular Society)

Meets 2nd Monday of every month, 10.30am-12.30pm. All welcome. Meet at Heritage Suite, Maesteg Health and Wellbeing Centre, Hartshorn House, Neath Road, CF34 9EE.

Macular Group - Milford Haven - (Macular Society)

First Thursday of the month, 2pm at Milford Haven Library, Cedar Court, Haven's Head Business Park, Milford Haven, Pembrokeshire. Contact Maddy.

Macular Group - Monmouth - (Macular Society)

First Thursday of the month, 2pm Wyesham Christian Fellowship, Chapel Close, Wyesham, Monmouth NP25 3NN contact David on 07951 869 586

Macular Group - Neath - (Macular Society)

Neath – Fourth Tuesday of the month 1pm at Neath Library Water St, Neath SA11 3EP contact Adele

Macular Group - Newport - (Macular Society)

First Monday of the month 1pm at the Salvation Army Hall 1 Hill Street Kingsway Centre Newport NP20 1LZ. Contact Caroline.

Macular Group - Newtown - (Macular Society)

Support group meets 1st Monday each month at 2pm. MCRA, Plas Dolerw, Milford Road, Newtown, Powys.

Macular Group - Pontyclun - (Macular Society)

First Wednesday of the month 2pm at The Pavillion, 52 Lanelay Road, Talbot Green, Pontyclun, CF72 8HY contact Julie Parker 07531 498 967

Macular Group - Ruthin - (Macular Society)

Meet on every second Thursday of the month. 11 am at Canolfan Naylor Leyland Centre, Ruthin.

Macular Group - Solva and St. David - (Macular Society)

Second Tuesday of the month at 2pm at St David’s Drop In Centre, City Hall, High Street, St. David's, Haverfordwest Dyfed, SA62 6SD. Contact Margaret Hughes.

Macular Group - Swansea - (Macular Society)

Bi-Monthly (Jan, March, May, July, Sept, Nov) First Thursday of the month 11.30am at the Grand Theatre Conservatory, Singleton St, Swansea SA1 3QJ contact Kate on 01792 401 450

Macular Group - Tenby - (Macular Society)

Last Thursday of the month, at 2pm, Community Centre Augustus Place, Tenby, Wales, SA70 7DJ; contact Val.

Macular Group - Tywyn - (Macular Society)

Meets 1st Tuesday of every month at 11 am. Neuad Pendre, Tywyn, Gwynedd.

Macular Group - Welshpool - (Macular Society)

Group meets 2nd and 4th Tuesday each month at 2pm. The Catholic Church, 2 Raven Street, Welshpool.

Macular Group - Ystradgynlais - (Macular Society)

Fourth Monday of the month 10.30am at Welfare Hall, Lesser hall, Brecon Road, Ystradgynlais SA9 1JJ. Contact Adele.

Macular Society All-Wales Telephone Groups - (Macular Society)

All Wales telephone calls to help those who are unable to make it to meetings in person. These will take place on: First Wednesday of the Month 11am – 12pm - English Speaking; Second Wednesday of the Month 2pm – 3pm - Welsh speaking; Third Wednesday of the month 2pm – 3pm – English speaking; Fourth Wednesday of the month 11am – 12pm – English Speaking.

Macular Society local support groups - (Macular Society)

The Macular Society has local self-help support groups across the UK. The groups vary in size and style but all offer invaluable practical and emotional support to people with macular disease from people with macular disease. Click the link below and enter your postcode to find the group near you.

Macular Society online condition-specific communities - (Macular Society)

The Macular Society has groups which are specific to particular types of macular disease: Best's disease, diabetic macular oedema, myopic macular degeneration, punctate inner choroidopathy (PIC), and Sorsby's fundus dystrophy. Each group meets monthly. They are an opportunity to find out more about the condition, and meet others who are affected.

Marfan Trust - (Marfan Trust)

Provides information and a range of literature about Marfan syndrome. Members are also invited to various events organised by the association. There is a range of membership options. The basic 'Friends Membership' (which gives access to the helpline, all online & social media resources & all standard e-news articles), is free.

Men's Group - (Bridgend County Borough Council)

VI/Deaf-blind men of all ages meet every 6 weeks in Wetherspoons Maesteg 2-4pm. Contact Sandy Davies, Rehabilitation Officer, for forthcoming dates.

Moving On Up - (Royal Society for Blind Children)

If you’re in Year 6 and you want to share your thoughts and chat to others who, like you, will be moving to Year 7 in September, then why not join our Moving on Up Group! As well as the other young people, our Family Practitioners will be on hand to answer your questions and help you work through the move. This Group will give you the chance to talk about your thoughts and feelings, help you work through them and help boost your confidence before September! The sessions are fun, and enjoyable but they will also offer you a safe space to talk to others and to the RSBC’s Family Practitioner.

Nystagmus Network - (Nystagmus Network)

The Nystagmus Network website has a range of information about the condition. However, membership gives additional benefits such as access to experts, advice, support and discounts on NN publications.

Peer support network - (Diabetes UK)

The Peer Support network connects people living with diabetes, giving the chance to share information, experience and support. It is run by a team of volunteers, each with lots of experience of managing and living with diabetes. You can talk by email at any time, or phone during opening hours.

Punctate Inner Choroidopathy support group - (Macular Society)

A virtual group for people affected by punctate inner choroidopathy (PIC). The group will meet monthly via Zoom, on the first Wednesday of the month at 7pm.

Retina UK Peer Support Groups - (Retina UK)

Retina UK volunteers run a number of Local Groups in towns across the UK. The also run an online group for 'Wrexham and Wales'. These enable people with RP to socialise and support each other as well as raise funds and run events on our behalf.

RNIB Connect Facebook groups - (RNIB)

RNIB's Connect Facebook groups are a supportive space for people affected by sight loss to talk to others in a similar situation about topics that matter to them, ask questions and share tips and stories. The group for Wales is given in the link below.

Sane Emotional Support - (Sane)

SANE provides emotional support and information to anyone affected by mental illness, including families, friends and carers. Their mental health support services are completely confidential. Whatever your problems or concerns, you will receive non-judgemental emotional support. Their professional staff and trained volunteers have specialist mental health knowledge; they can help you consider options for support that address your individual circumstances.

Sight Life Discussion Group - (Sight Life)

Held every Tuesday 11.15am to 1.30pm at Jones Court, Womanby Street, Cardiff. Join this group of visually impaired people of Cardiff and the Vale, for talk and support. Be involved in lively discussions about a wide variety of topics (excluding religion and politics). The group also occasionally enjoys a trip out for lunch.

Sight Life Dual Sensory Support Group - (Sight Life)

The club meets at Jones Court, Womanby Street, Cardiff on the 3rd Friday of every month fron 10.30am - 12.30pm. Anyone with a sight and hearing impairment are welcome. Volunteers will be on hand to assist if need be.

Sight Life Forum (for BME) - (Sight Cymru)

Support group for people from a minority (BME) community who have sight loss, or care for someone with sight loss. The group meets on a monthly basis to share experiences, learn new things and suggest ways of improving services.

Sightlife Group - (Sight Cymru)

Support group for people from an ethnic minority community who have sight loss, or care for someone with sight loss. The group meets twice a month, once in Newport and once in Cardiff, to share experiences, learn new things and suggest ways of improving services.

Support & mentoring - (Society of Visually Impaired Lawyers (SoVIL))

Provides support for visually impaired people working in the legal profession, including a student mentoring scheme. They also share information/knowledge about IT solutions to information gathering; accessing printed material and legal material in alternative formats.

Support for parents of children with Rb - (Childhood Eye Cancer Trust (CHECT))

The Childhood Eye Cancer Trust (CHECT) is there to help you through the difficult period of diagnosis and treatment of your child and beyond, offering support throughout their teenage years and into adulthood.

TAVIP Membership - (Technology Association of Visually Impaired people (TAVIP))

TAVIP is an organisation for all visually impaired people with an interest in computers, from those using them in schools to professionals working in IT, and for professionals interested in issues related to IT and visual impairment.

UK Keratoconus Self Help and Support - (UK Keratoconus Self Help & Support Association)

A membership organisation for people with keratoconus. The website has information about the condition, and an on-line discussion forum.

UK Wolfram Syndrome support group - (UK Wolfram Syndrome Society)

An on-line forum providing information and support to families affected by the condition. Some information is also available to download.

Working Age and Young People Group - (Macular Society)

Zoom meeting on the fourth Friday of the month 10.30am.

Young Sane - (Sane)

Young SANE is a virtual community that focuses on mental health for people aged under 25. They want to highlight the issues that are particularly relevant to young people and talk about their unique needs. Young SANE also celebrates the ingenuity, passion and dedication of young people who have made a commitment to tackling mental health stigma, and changing mental health for good.