Retinitis pigmentosa
Definition: Retinitis pigmentosa is the term used for a group of closely related inherited eye conditions that affect the retina, the specialised light-sensitive tissue at the back of the eye. A person’s sight loss usually happens gradually, over many years – and sometimes eventually leads to registered blindness. Retinitis pigmentosa is the most common inherited eye condition, affecting around one in 4,000 people in the UK.
Category: eye condition
Credit: Fight for Sight
Source:
https://www.fightforsight.org.uk/about-the-eye/a-z-eye-conditions/retinitis-pigmentosa/
Last Updated: 12th of June 2024
Services mentioning Retinitis pigmentosa
You can have an eye examination for free if you have an eye problem that occurs suddenly. Under the
Eye Health Examination Wales (EHEW) initiative you are entitled to have your eyes examined free of
charge by a registered
optometrist if you have an eye problem that occurred suddenly (acutely) which you think requires urgent attention. Patients with an acute problem with their eye or vision can be seen for the following issues: Minor eye injury; red eye; painful eye; foreign body; sudden loss/ change in vision; new onset
flashes/ floaters. You can self-refer to a local optometrist without the need to see a GP. You can also have an EHEW if you: have been referred by your GP to an EHEW registered optometrist because of an eye problem; have sight in one eye only, i.e. you are effectively blind in your worse eye; have a hearing impairment and are profoundly
deaf; suffer from
retinitis pigmentosa; have Black African, Black Caribbean, Indian, Pakistani or Bangladeshi family origins; are at risk of eye disease by other reasons of race or family history. Go to link below to search for your nearest practitioner.
RP helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with
daily living.
Retina UK volunteers run a number of Local Groups in towns across the UK. The also run an online group for 'Wrexham and Wales'. These enable people with
RP to socialise and support each other as well as raise funds and run events on our behalf.
An on-line resource giving information about the care of
retinitis pigmentosa. There are sections for patients, parents, family & friends, teachers, employers and health professionals.
