Held every Tuesday 11.15am to 1.30pm at Jones Court, Womanby Street, Cardiff. Join this group of
visually impaired people of Cardiff and the Vale, for talk and support. Be involved in lively discussions about a wide variety of topics (excluding religion and politics). The group also occasionally enjoys a
trip out for lunch.
Other Results
The
Nystagmus Network virtual get together group for adults living with acquired nystagmus to connect with other people with nystagmus and make new friends.
Provides a website resource, on-line discussion forum and telephone support for people affected by
albinism.
Provides support for those affected by
Alström Syndrome, their
carers and professionals working with them. This includes a forum, help with gaining access to
medical assessments with doctors who have expertise in Alström Syndrome, quarterly medical screening clinics and a newsletter.
Aniridia Network provides a positive, supportive network of families, individuals and professionals in order to share ideas, experiences and give emotional support. It provides information to health professionals, patients and their families, about aniridia, the related conditions and their implications for the patient.
Monthly chat for adults with Bardet-Biedl Syndrome. Events are arranged on a month by month basis, generally at the end of the month. If you would like to join in, please email rebecca.perfect@bbsuk.org.uk.
BBSUK can help by putting you in touch with other families who are facing similar problems, by passing on
advice which has helped others in the day to day management of thieir
children, and by sending information which will help professionals in
medical and educational fields to understand more about our special children.
Local
support groups in-person and online. For groups in Wales contact Rachel below for more information.
BUS supports patients with
uveitis">Birdshot, particularly when first diagnosed and provides up-to-date information about the condition and treatment options to help empower patients and ensure they have access to the most appropriate treatment possible.
The Cerebral
Visual Impairment Society hold an annual meeting which provides opportunities for parents, people with CVI and professionals to meet up and learn from each other in a mutually supportive environment.
The priority for the Group is to create opportunities to bring families together. If you are interested in attending an event or helping to organise one in your area, follow the link below.
We hold monthly evening group sessions for parents and
carers of
vision impaired children and
young people (0-25 years) which are facilitated by our team of RSBC Family Practitioners. It’s a supportive group where you will learn from the experiences of other parents and carers and in turn be able to support others with your own experiences and stories. Each month there will be a new topic covering many of the milestones and issues which parents and carers might face. It’s a safe place to share your feelings knowing others will support you. What to expect: Peer support; Empowering each other; Learning about and understanding
mental health and well-being; Sharing knowledge and experience; Discussing the challenges of raising a child with a vision impairment; Open
advice forum – no question is too big or too small.
Groups provide parents of
disabled children with essential practical and emotional support. Workshops and other events are organised.
The voluntary groups across Wales are run voluntarily by people living with
diabetes. These groups can offer you local information and support and the opportunity to meet other people who live with diabetes.
An on-line forum where people can discuss any aspect of
dystonia.
Glaucoma UK organises patient
support groups across the UK. The concept of the groups is to allow patients to meet their health care professionals in a relaxed atmosphere, away from the time restricted atmosphere on outpatients, so the condition and treatment can be discussed in more depth. The weblink below gives details and contact points.
Meet other people with
glaucoma and share information and experiences. The
support groups are also attended by health care professionals and guest speakers, so you’ll have an opportunity to speak with them in a relaxed atmosphere and ask the questions that matter most to you. The groups may also run social events and arrange fundraising activities.
A on-line discussion forum for
glaucoma patients and their families. The website also includes information about all aspects of glaucoma.
An on-line forum where people with an interest in the condition can raise and discuss issues.
Come and meet other parents of
Visually Impaired children every other Tuesday at 19:30GMT in our free online meet up sessions. (On Mondays from August 2023)
All Wales telephone calls to help those who are unable to make it to meetings in person. These will take place on: First Wednesday of the Month 11am – 12pm - English and Welsh speaking.
The
Macular Society has local self-help
support groups across the UK. The groups vary in size and style but all offer invaluable practical and emotional support to people with macular disease from people with macular disease. Click the link below and enter your postcode to find the group near you.
Provides information and a range of literature about
Marfan syndrome. Members are also invited to various events organised by the association. There is a range of membership options. The basic 'Friends Membership' (which gives access to the
helpline, all online & social media resources & all standard e-news articles), is free.
An online group where people can fellow
Marfan and Loeys-Dietz supporters, ask questions, share worries and swap tips.
An online group where people can meet similarly situated parents and discuss common concerns in a friendly, warm environment.
If you’re in Year 6 and you want to share your thoughts and chat to others who, like you, will be moving to Year 7 in September, then why not join our Moving on Up Group! As well as the other
young people, our Family Practitioners will be on hand to answer your questions and help you work through the move. This Group will give you the chance to talk about your thoughts and feelings, help you work through them and help boost your confidence before September! The sessions are fun, and enjoyable but they will also offer you a safe space to talk to others and to the RSBC’s Family Practitioner.
The
Nystagmus Network website has a range of information about the condition. However, membership gives additional benefits such as access to experts,
advice, support and discounts on NN publications.
The
Nystagmus Network virtual adult get together group for adults living with congenital nystagmus to connect with other people with nystagmus and make new friends.
Virtual monthly
support groups for parents of
children with
nystagmus, and for adults living with acquired or congenital nystagmus. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other.
The Peer Support network connects people living with
diabetes, giving the chance to share information, experience and support. It is run by a team of volunteers, each with lots of experience of managing and living with diabetes. You can talk by email at any time, or phone during opening hours.
This interest-focused group will give you the opportunity to share your stories, tips, hints and
advice around all things creative from painting to pottery, sketching to sculpting and every creative talent in between. It will meet online, via Zoom.
A peer
support group where you can share your experiences, tips and hints around all things Tech. The meetings take place bi-monthly via Zoom.
Retina UK volunteers run a number of Local Groups in towns across the UK. The also run an online group for 'Wrexham and Wales'. These enable people with
RP to socialise and support each other as well as raise funds and run events on our behalf.
An interest-focused group is a safe, friendly & welcoming place which will give you the opportunity to share your stories, tips, hints and
advice around all things home & garden from DIY & decorating to planting flowers & mowing the lawn. It will meet online, via Zoom, bi-monthly.
RNIB's Connect Facebook groups are a supportive space for people affected by sight loss to talk to others in a similar situation about topics that matter to them, ask questions and share tips and stories. The group for Wales is given in the link below.
SANE provides emotional support and information to anyone affected by
mental illness, including families, friends and
carers. Their mental health support services are completely confidential. Whatever your problems or concerns, you will receive non-judgemental emotional support. Their professional staff and trained volunteers have specialist mental health knowledge; they can help you consider options for support that address your individual circumstances.
Provides support for
visually impaired people working in the legal profession, including a student mentoring scheme. They also share information/knowledge about IT solutions to information gathering; accessing printed material and legal material in alternative formats.
The Childhood Eye Cancer Trust (CHECT) is there to help you through the difficult period of diagnosis and treatment of your
child and beyond, offering support throughout their teenage years and into adulthood.
TAVIP is an organisation for all
visually impaired people with an interest in computers, from those using them in schools to professionals working in IT, and for professionals interested in issues related to IT and visual impairment.
A membership organisation for people with
keratoconus. The website has information about the condition, and an on-line discussion forum.
An on-line forum providing information and support to families affected by the condition. Some information is also available to download.
A monthly Zoom-based discussion group, offers a relaxed and sociable environment for people of a working age who are
visually impaired. The forum provides a supportive space where you can share your experiences and tips around employment, particularly valuable for younger members, and hear about relevant topics from guest speakers.
