Wales Council of the Blind

Retina UK

Description: Retina UK is the national charity for families living with inherited retinal dystrophies. They fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. They support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.

Weblink: https://retinauk.org.uk/

Tel: 01280 821334

Email: services@retinauk.org.uk

Category: Third/voluntary Sector


Services Provided

UK Care Pathway for RP

An on-line resource giving information about the care of retinitis pigmentosa. There are sections for patients, parents, family & friends, teachers, employers and health professionals.

Retina UK Helpline

RP helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with daily living.

Retina UK Talk and Support

For people who prefer a regular call from someone who is affected with inherited sight loss and can offer a listening ear, provide information, hints and tips.

Retina UK Peer Support Groups

Retina UK volunteers run a number of Local Groups in towns across the UK. The also run an online group for 'Wrexham and Wales'. These enable people with RP to socialise and support each other as well as raise funds and run events on our behalf.

Events associated with this provider:

28th of February 2024

Retina UK - Wrexham & Wales local peer support group (online)

The guest speaker will be Lucy Ashton, Business Development at Seable Holidays. Find out more via the link provided.

Hosted by - Retina UK

18th of April 2024

Retina UK peer support group - 'Talking Travel' (online)

Bi-monthly peer support group, 'Talking Travel'. The sessions are a chance to share your experiences, tips and hints around all things travel from going on holidays to general every day getting about. To find out more and book a place, visit the link provided.

Hosted by - Retina UK

20th of June 2024

Retina UK peer support group - 'Talking Travel' (online)

Bi-monthly peer support group, 'Talking Travel'. The sessions are a chance to share your experiences, tips and hints around all things travel from going on holidays to general every day getting about. To find out more and book a place, visit the link provided.

Hosted by - Retina UK