Retina UK
Description: Retina UK is the national charity for families living with inherited retinal dystrophies. They fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. They support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.
Weblink: https://retinauk.org.uk/
Tel: 01280 821334
Email: services@retinauk.org.uk
Category: Third/voluntary Sector
Services Provided
UK Care Pathway for RP
An on-line resource giving information about the care of retinitis pigmentosa. There are sections for patients, parents, family & friends, teachers, employers and health professionals.Retina UK Helpline
RP helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with daily living.Retina UK Talk and Support
For people who prefer a regular call from someone who is affected with inherited sight loss and can offer a listening ear, provide information, hints and tips.Retina UK Peer Support Groups
Retina UK volunteers run a number of Local Groups in towns across the UK. The also run an online group for 'Wrexham and Wales'. These enable people with RP to socialise and support each other as well as raise funds and run events on our behalf.Events associated with this provider:
21st of January 2025
Retina UK's Men's Peer Support Group meeting (online)
For this session, there will be a guest speaker from Thomas Pocklington Trust, who will chat about how to manage our physical and mental wellbeing. For more information and to book a place, click the link provided.Hosted by - Retina UK
23rd of January 2025
Retina UK Webinar - 'Mark Goes to Las Vegas' (online)
Retina UK's Information and Support Coordinator reports on his experience at the Consumer Electronics Show (CES), where leading technology companies and innovators showcase their offerings. For more information and to book a place click the link provided.Hosted by - Retina UK
28th of January 2025
Retina UK ‘Talking’ Tech Peer Support Group Meeting (online)
This session is an opportunity to find out about the work of British Wireless for the Blind Fund. You can find out more and register to attend the session via the link provided.Hosted by - Retina UK
6th of February 2025
Retina UK Young Adults Peer Support Group (online)
Young Adults Peer Support Group provides a welcoming, safe and friendly opportunity for young adults with inherited sight loss aged 18 to 30 to meet up to share experiences, tips and information. To find out more and book a place, click the weblink provided.Hosted by - Retina UK
13th of February 2025
Retina UK Webinar - 'Together We Can: ways you can get involved!' (online)
A chance to find out how you can get involved in fundraising for Retina UK. For more information, click the link provided.Hosted by - Retina UK