Wales Council of the Blind

Retina UK

Description: Retina UK is the national charity for families living with inherited retinal dystrophies. They fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. They support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.


Tel: 01280 821334


Category: Third/voluntary Sector

Services Provided

UK Care Pathway for RP

An on-line resource giving information about the care of retinitis pigmentosa. There are sections for patients, parents, family & friends, teachers, employers and health professionals.

Retina UK Helpline

RP helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with daily living.

Retina UK Talk and Support

For people who prefer a regular call from someone who is affected with inherited sight loss and can offer a listening ear, provide information, hints and tips.

Retina UK Peer Support Groups

Retina UK volunteers run a number of Local Groups in towns across the UK. The also run an online group for 'Wrexham and Wales'. These enable people with RP to socialise and support each other as well as raise funds and run events on our behalf.

Events associated with this provider:

7th of December 2023

Webinar: Artificial Intelligence

Retina UK Webinar. For more information click on the link.

Hosted by - Retina UK

13th of December 2023

Wrexham & Wales peer support group meeting (online)

Join group facilitator Richard Zimbler for the next meeting with guest speaker Jon Hignett, Growing Support Consultant for the National Trust in Wales who will talk about some of their activities & experiences and how accessibility friendly they are for V.I people across Wales. For more information and to book your place, visit the link provided.

Hosted by - Retina UK

11th of January 2024

Retina UK National Peer Support Group (online)

This National Peer Support Group provides a welcoming, safe and friendly opportunity for people to meet up to share experiences, tips and information. Meetings are held quarterly - Spring, Summer, Autumn & Winter and cover a range of different topics and guest speakers. Click on the link for more information and register your attendance.

Hosted by - Retina UK