Retina UK
Description: Retina UK is the national charity for families living with inherited retinal dystrophies. They fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. They support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.
Weblink: https://retinauk.org.uk/
Tel: 01280 821334
Email: services@retinauk.org.uk
Category: Third/voluntary Sector
Services Provided
UK Care Pathway for RP
An on-line resource giving information about the care of retinitis pigmentosa. There are sections for patients, parents, family & friends, teachers, employers and health professionals.Retina UK Helpline
RP helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with daily living.Retina UK Talk and Support
For people who prefer a regular call from someone who is affected with inherited sight loss and can offer a listening ear, provide information, hints and tips.Retina UK Peer Support Groups
Retina UK volunteers run a number of Local Groups in towns across the UK. The also run an online group for 'Wrexham and Wales'. These enable people with RP to socialise and support each other as well as raise funds and run events on our behalf.Retina UK Talking Home and Garden peer support group
An interest-focused group is a safe, friendly & welcoming place which will give you the opportunity to share your stories, tips, hints and advice around all things home & garden from DIY & decorating to planting flowers & mowing the lawn. It will meet online, via Zoom, bi-monthly.Retina UK 'Talking' Creative Arts Peer Support Group
This interest-focused group will give you the opportunity to share your stories, tips, hints and advice around all things creative from painting to pottery, sketching to sculpting and every creative talent in between. It will meet online, via Zoom.Retina UK 'Talking' Tech Peer Support Group
A peer support group where you can share your experiences, tips and hints around all things Tech. The meetings take place bi-monthly via Zoom.Events associated with this provider:
9th of July 2025
Retina UK's Men's Peer Support Group (online)
They are a safe, friendly & welcoming place which will give guys with sight loss the opportunity to all sit around a virtual table and discuss what’s on their minds.Hosted by - Retina UK
19th of September 2025
Retina UK Professionals' Conference 2025 and Annual Conference 2025 (online)
The Professionals' Conference is is open to all health, social and education professionals. For the full programme and to register for a place, click the link provided.Hosted by - Retina UK