Retina UK
Description: Retina UK is the national charity for families living with inherited retinal dystrophies. They fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. They support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.
Weblink: https://retinauk.org.uk/
Tel: 01280 821334
Email: services@retinauk.org.uk
Category: Third/voluntary Sector
Services Provided
UK Care Pathway for RP
An on-line resource giving information about the care of retinitis pigmentosa. There are sections for patients, parents, family & friends, teachers, employers and health professionals.Retina UK Helpline
RP helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with daily living.Retina UK Talk and Support
For people who prefer a regular call from someone who is affected with inherited sight loss and can offer a listening ear, provide information, hints and tips.Retina UK Peer Support Groups
Retina UK volunteers run a number of Local Groups in towns across the UK. The also run an online group for 'Wrexham and Wales'. These enable people with RP to socialise and support each other as well as raise funds and run events on our behalf.Events associated with this provider:
7th of December 2023
Webinar: Artificial Intelligence
Retina UK Webinar. For more information click on the link.Hosted by - Retina UK
13th of December 2023
Wrexham & Wales peer support group meeting (online)
Join group facilitator Richard Zimbler for the next meeting with guest speaker Jon Hignett, Growing Support Consultant for the National Trust in Wales who will talk about some of their activities & experiences and how accessibility friendly they are for V.I people across Wales. For more information and to book your place, visit the link provided.Hosted by - Retina UK
11th of January 2024
Retina UK National Peer Support Group (online)
This National Peer Support Group provides a welcoming, safe and friendly opportunity for people to meet up to share experiences, tips and information. Meetings are held quarterly - Spring, Summer, Autumn & Winter and cover a range of different topics and guest speakers. Click on the link for more information and register your attendance.Hosted by - Retina UK