Retina UK
Description: Retina UK is the national charity for families living with inherited retinal dystrophies. They fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. They support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.
Weblink: https://retinauk.org.uk/
Tel: 01280 821334
Email: services@retinauk.org.uk
Category: Third/voluntary Sector
Services Provided
UK Care Pathway for RP
An on-line resource giving information about the care of retinitis pigmentosa. There are sections for patients, parents, family & friends, teachers, employers and health professionals.Retina UK Helpline
RP helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with daily living.Retina UK Talk and Support
For people who prefer a regular call from someone who is affected with inherited sight loss and can offer a listening ear, provide information, hints and tips.Retina UK Peer Support Groups
Retina UK volunteers run a number of Local Groups in towns across the UK. The also run an online group for 'Wrexham and Wales'. These enable people with RP to socialise and support each other as well as raise funds and run events on our behalf.Events associated with this provider:
23rd of January 2025
Retina UK Webinar - 'Mark Goes to Las Vegas' (online)
Retina UK's Information and Support Coordinator reports on his experience at the Consumer Electronics Show (CES), where leading technology companies and innovators showcase their offerings. For more information and to book a place click the link provided.Hosted by - Retina UK
13th of February 2025
Retina UK Webinar - 'Together We Can: ways you can get involved!' (online)
A chance to find out how you can get involved in fundraising for Retina UK. For more information, click the link provided.Hosted by - Retina UK