Usher syndrome
Definition: Form of deafblindness where people are born deaf or hard of hearing and start to lose their sight (with retinitis pigmentosa) in the school years.
Category: eye condition
Credit: Sense
Source:
https://www.sense.org.uk/information-and-advice/conditions/usher-syndrome/what-is-usher-syndrome/
Last Updated: 12th of June 2024
Services mentioning Usher syndrome
If you or someone in your family has
Usher syndrome, there are lots of ways we can help. Our specialist Usher team can help you to understand the condition and what it means for you, as well as give practical
advice about benefits, employment opportunities – and much more! We are here to support you whatever your age, whatever stage of your Usher journey you are on, and whatever type of Usher syndrome you have.
It may be helpful to find some professional support to help you talk through the impacts of
Usher syndrome on you emotionally and physically, but if you need just to chat with another parent who has been there before and can share their experiences with you, you can contact us.
