Wales Council of the Blind

Usher syndrome

Definition: Form of deafblindness where people are born deaf or hard of hearing and start to lose their sight (with retinitis pigmentosa) in the school years.

Category: eye condition

Credit: Sense


Services mentioning Usher syndrome

Sense Usher Service - (Sense) Information

The Sense Usher Service specialises in the field of Usher syndrome and supports people with Usher, their families and professionals. Support covers advice, assessments, training, mentoring and professional support.

Usher Kids Support - (Usher Kids) Advice

It may be helpful to find some professional support to help you talk through the impacts of Usher syndrome on you emotionally and physically, but if you need just to chat with another parent who has been there before and can share their experiences with you, you can contact us.