Wales Council of the Blind

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Nystagmus Awareness Day – Saturday 20th June 2026

Saturday 20th June is Nystagmus Awareness Day, the event that tries to make sure that as many people as possible get to know more about this complex eye condition, characterised by wobbling or flickering of the eyes.

Nystagmus Network (NN) is a membership organisation that provides information and support to people with the condition, their families and professionals working with them, and also funds research. Support includes:

  • Provision of free factsheets and other materials which can be downloaded from the website. They cover issues such as benefits, treatment options, and an education hub.
  • An information and support line which can be contacted on 01427 718093 or via email at info@nystagmusnet.org.
  • Virtual support networks that meet monthly.
  • Benefits advice
You can find out more about Nystagmus Network on their website.

For more information about what's going on to mark Nystagmus Awareness Day 2026 and how you can get involved, including resources for schools and clinics, a children's poetry competition and fundraising ideas, click here.