Wales Council of the Blind

Nystagmus Network

Description: UK charity providing support and information to people with Nystagmus and to professionals. Also funds research. Membership needed for some services.

Weblink: http://www.nystagmusnet.org

Tel: 0845 634 2630

Email: info@nystagmusnet.org

Category: Third/voluntary Sector


Services Provided

Nystagmus Network helpline

The helpline can answer questions on what it's like to have nystagmus, on treatment and research, on DLA, on education and employment, on driving and discrimination, in fact anything you can think of related to nystagmus, whether congenital (early onset) or acquired (late onset). Or you can just phone for a chat with someone else who has nystagmus.

Nystagmus Network

The Nystagmus Network website has a range of information about the condition. However, membership gives additional benefits such as access to experts, advice, support and discounts on NN publications.

Nystagmus Network Virtual adults' get together - congenital nystagmus

The Nystagmus Network virtual adult get together group for adults living with congenital nystagmus to connect with other people with nystagmus and make new friends.

Acquired nystagmus get together

The Nystagmus Network virtual get together group for adults living with acquired nystagmus to connect with other people with nystagmus and make new friends.

Events associated with this provider:

26th of February 2025

Nystagmus Network virtual support networks for people living with acquired nystagmus (online)

A virtual get together for people living with Acquired Nystagmus. An opportunity to meet like-minded people, share experiences, make new friends and support each other. If you would like to join in, please email: info@nystagmusnet.org

Hosted by - Nystagmus Network

27th of February 2025

Nystagmus Network virtual support group for adults living congenital nystagmus (online)

A virtual get together for adults living with congenital nystagmus. It is an opportunity to meet like-minded people, share experiences, make new friends and support each other. If you would like to join in, please email: info@nystagmusnet.org

Hosted by - Nystagmus Network