Nystagmus Network
Description: UK charity providing support and information to people with Nystagmus and to professionals. Also funds research. Membership needed for some services.
Weblink: http://www.nystagmusnet.org
Tel: 0845 634 2630
Email: info@nystagmusnet.org
Category: Third/voluntary Sector
Services Provided
Nystagmus Network helpline
The helpline can answer questions on what it's like to have nystagmus, on treatment and research, on DLA, on education and employment, on driving and discrimination, in fact anything you can think of related to nystagmus, whether congenital (early onset) or acquired (late onset). Or you can just phone for a chat with someone else who has nystagmus.Nystagmus Network
The Nystagmus Network website has a range of information about the condition. However, membership gives additional benefits such as access to experts, advice, support and discounts on NN publications.Nystagmus Network Virtual adults' get together - congenital nystagmus
The Nystagmus Network virtual adult get together group for adults living with congenital nystagmus to connect with other people with nystagmus and make new friends.Acquired nystagmus get together
The Nystagmus Network virtual get together group for adults living with acquired nystagmus to connect with other people with nystagmus and make new friends.Virtual parents’ get together
The Nystagmus Network hosts virtual parent get togethers on Zoom. If you’re the parent, carer or other family member of a child or young person with nystagmus and would like to join in, meet others and make new friends, please email us.Nystagmus Network virtual support network
Virtual monthly support groups for parents of children with nystagmus, and for adults living with acquired or congenital nystagmus. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other.Events associated with this provider:
18th of June 2025
The Great Summer Get Together 2025 (online)
All three Nystagmus support groups will be getting together online. A representative from Seable will be there, to talk about their VI friendly holidays and there will also be a quick quiz. You can book a place via the link provided. You can find out more about the regular meetings here, or email info@nystagmusnet.org.Hosted by - Nystagmus Network