Virtual Monthly Chats for adults with Bardet-Biedl Syndrome
Bardet-Biedl Syndrome UK leads virtual monthly chats for adults with Bardet-Biedl Syndrome, a rare, genetic disorder, which affects approximately 1 in 100,000 babies born.
Events are arranged on a month by month basis, generally at the end of the month and the relaxed Zoom sessions are a chance to socialise and get to know other adults living with BBS. New members are welcome. The next session will be on Wednesday 4th November from 7 pm to 8 pm. If you would like to join in, please email admin@bbsuk.org.uk and you will be sent all the details.
BBS UK also runs an Adult Social WhatsApp group. It's a friendly and welcoming space where members can chat, get to know one another and build connections with people who understand life with BBS. Whether you'd like to share experiences, ask questions, celebrate achievements or simply have a chat, everyone is welcome. The WhatsApp group is open to BBS UK members aged 18 and over living in the UK or Ireland.
Posted on the 21st of October 2026