Wales Council of the Blind

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Nystagmus Network virtual support networks

Nystagmus Network (NN) runs virtual support groups for parents of children with nystagmus, and for adults living with acquired or congenital nystagmus. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other.

The groups for adults meet monthly, and dates of the next sessions are:

  • Acquired Nystagmus - Wednesday 25th March at 5 pm
  • Congenital Nystagmus - Thursday 26th March at 7 pm
Zoom calls for parents and carers are held quarterly, usually in the last week of January, April, June and September. However, the next session will be on Wednesday 25th March, and will be an opportunity to review NN's draft guide to guide for parents and carers. It covers how nystagmus is diagnosed in very young children, and is a family friendly version of the clinical guidance for eye doctors about managing nystagmus in childhood, Please contact NN in advance of the meeting to receive a draft copy of the document.

You can find out more here, or email info@nystagmusnet.org.

Posted on the 23rd of March 2026