Help shape Nystagmus Network's parents' guide
The Nystagmus Network (NN) is creating a vital, parent-friendly resource to inform and support families through a child’s nystagmus diagnosis. The new resource will translate clinical guidance into practical, easy-to-understand information for parents and carers, giving them the knowledge and support they need right from the start.
Please help by letting NN know what information or support services you wish you'd known about when your child was being diagnosed with nystagmus. Please send your thoughts via email to info@nystagmusnet.org.
Posted on the 19th of January 2026