Wales Council of the Blind

Nystagmus Network

Description: UK charity providing support and information to people with Nystagmus and to professionals. Also funds research. Membership needed for some services.

Weblink: http://www.nystagmusnet.org

Tel: 0845 634 2630

Email: info@nystagmusnet.org

Category: Third/voluntary Sector


Services Provided

Nystagmus Network helpline

The helpline can answer questions on what it's like to have nystagmus, on treatment and research, on DLA, on education and employment, on driving and discrimination, in fact anything you can think of related to nystagmus, whether congenital (early onset) or acquired (late onset). Or you can just phone for a chat with someone else who has nystagmus.

Nystagmus Network

The Nystagmus Network website has a range of information about the condition. However, membership gives additional benefits such as access to experts, advice, support and discounts on NN publications.

Events associated with this provider:

28th of February 2024

Acquired nystagmus get together (online)

Virtual monthly support group for people living with acquired nystagmus. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other. You can find out more about the regular meetings via their website or email info@nystagmusnet.org to receive the Zoom invitation.

Hosted by - Nystagmus Network

29th of February 2024

Virtual adults’ get together – congenital nystagmus (online)

Virtual monthly support group for adults living with congenital nystagmus. They are an opportunity to meet like-minded people, share experiences, make new friends and support each other. You can find out more about the regular meetings via their website or email info@nystagmusnet.org to receive the Zoom invitation.

Hosted by - Nystagmus Network