Wales Council of the Blind

Bardet-Biedl Syndrome UK

Description: BBSUK is the only registered charity in the UK supporting people with Laurence-Moon-Bardet-Biedl (LMBB) Syndrome, their families and carers. The aims of the Society are: to preserve and protect the health and promote the welfare of persons suffering from BBS, and to advance the education of the medical and educational professionals and the general public on the subject of BBS.


Tel: 07510 384242


Category: Third/voluntary Sector

Last Updated: 23rd of October 2023

Services Provided

BBS support

BBSUK can help by putting you in touch with other families who are facing similar problems, by passing on advice which has helped others in the day to day management of thieir children, and by sending information which will help professionals in medical and educational fields to understand more about our special children.

Benefit information

The website has some information regarding benefits for people with Bardet-Biedl Syndrome.