Retina UK is considering developing a secure UK-wide registry - a trusted, secure database combining medical and personal experience data from people living with inherited retinal conditions and is seeking the views of people affected in a series of online focus groups. For full details and to register your interest, visit Retina UK's website.

Location: online

Weblink: https://retinauk.org.uk/event/retina-uk-clinical-and-patient-registry-focus-groups/?fbclid=IwY2xjawLcVv1leHRuA2FlbQIxMABicmlkETBiSUd1bFBwVTNNM2FFVzBsAR7133MdIMFA2wwR9BGNPxMpC0kzyG1DgvnRSxBXQV5qUIKVoK9PkDXjcU3Gzw_aem_klOJLNnUp6ttWmYh4iebhA

Hosted on: 22nd of July 2025 at: 7pm - 8.30pm by Retina UK