Bardet-Biedl Syndrome UK
Description: BBSUK is the only registered charity in the UK supporting people with Laurence-Moon-Bardet-Biedl (LMBB) Syndrome, their families and carers. The aims of the Society are: to preserve and protect the health and promote the welfare of persons suffering from BBS, and to advance the education of the medical and educational professionals and the general public on the subject of BBS.
Weblink: https://bbsuk.org.uk
Tel: 07510 384242
Email: admin@bbsuk.org.uk
Category: Third/voluntary Sector
Last Updated: 23rd of October 2023
Services Provided
BBS support
BBSUK can help by putting you in touch with other families who are facing similar problems, by passing on advice which has helped others in the day to day management of thieir children, and by sending information which will help professionals in medical and educational fields to understand more about our special children.Events associated with this provider:
16th of May 2024
Virtual monthly chat for adults with Bardet-Biedl Syndrome (online)
Virtual monthly chat for adults with Bardet-Biedl Syndrome, a rare, genetic disorder. For more information, please email rebecca.perfect@bbsuk.org.uk.Hosted by - Bardet-Biedl Syndrome UK