Opening soon - Glaucoma UK's Patient Voices Survey
Glaucoma UK is about to launch a National Glaucoma Patient Voices Survey, and wants to get as many Welsh voices included as possible.
Glaucoma care in the UK is evolving fast, with new plans to reduce backlogs, expand community-based care, and integrate new technologies. Those plans are quite different across the four nations, resulting in a ‘postcode lottery’ for people living with glaucoma. Glaucoma UK is concerned that there is a risk that patient views and fears may go unheard in the noise of the system.
The survey will be open from 6th July to 6th September 2026. and this is the only opportunity to gather the volume of responses needed to influence upcoming policy and planning discussions. It's the largest ever national survey of people affected by glaucoma, aiming to hear from around 10,000 patients and people under regular monitoring. The plan is to capture lived experience at scale and turn it into evidence that can inform national policy, service design and research priorities. It's not a review or scoring of individual services. Instead, it focuses on the realities of living with glaucoma — including communication, information, anxiety about sight loss, daily impact, and issues such as driving and independence — and will be used to work constructively with national decision makers.
During July and August, a representative of Glaucoma UK is offering to visit vi clubs or groups in Wales who would like to find out more about the survey, and provide support in completing it if necessary. If your group would like to take up this offer, please send an email to Becky Burn, Glaucoma UK's Training & Engagement Officer at r.burn@glaucoma.uk.
You can find out more about the Patient Voices Survey, and sign up to be told when the survey is live, here.
Posted on the 15th of June 2026