Marfan Trust online events
The Marfan Trust runs some online events for people affected by Marfan syndrome.
The next events are:
- Parent's Corner on 19th May at 7 pm. A chance to meet similarly situated parents of children with Marfan and Loeys-Dietz syndrome and discuss common concerns in a friendly, warm environment. For more information, click here.
- 'Empowered Relief ' at 10 am on 6th June. An opportunity to learn effective pain management skills that help you regain control, reduce suffering, and move forward with greater confidence and resilience. More information here.
Posted on the 18th of May 2026