Retina UK Clinical and Patient Registry Focus Groups
Retina UK is considering developing a secure UK-wide registry - a trusted, secure database combining medical and personal experience data from people living with inherited retinal conditions and is seeking the views of people affected in a series of online focus groups.
There will be four, age-based groups held between Monday 21st and Wednesday 23rd July. For full details and to register your interest, visit Retina UK's website.
Posted on the 10th of July 2025