Retina UK
Description: Retina UK is the national charity for families living with inherited retinal dystrophies. They fund research and provide information and support to those affected by inherited sight loss and the professionals who support them. They support anyone with the following visual impairments: Retinitis Pigmentosa (RP), Rod Cone dystrophy, Cone Rod dystrophy, Choroideremia, Leber congenital amaurosis (LCA), Bardet-Biedl syndrome (BBS), Usher syndrome, Stargardt disease.
Weblink: https://retinauk.org.uk/
Tel: 01280 821334
Email: services@retinauk.org.uk
Category: Third/voluntary Sector
Services Provided
UK Care Pathway for RP
An on-line resource giving information about the care of retinitis pigmentosa. There are sections for patients, parents, family & friends, teachers, employers and health professionals.Retina UK Helpline
RP helpline is operated by volunteers all directly affected with a genetic eye disorder, who genuinely understand the issues faced with daily living.Retina UK Talk and Support
For people who prefer a regular call from someone who is affected with inherited sight loss and can offer a listening ear, provide information, hints and tips.Retina UK Peer Support Groups
Retina UK volunteers run a number of Local Groups in towns across the UK. The also run an online group for 'Wrexham and Wales'. These enable people with RP to socialise and support each other as well as raise funds and run events on our behalf.Events associated with this provider:
20th of June 2024
Retina UK peer support group - 'Talking Travel' (online)
Bi-monthly peer support group, 'Talking Travel'. The sessions are a chance to share your experiences, tips and hints around all things travel from going on holidays to general every day getting about. To find out more and book a place, visit the link provided.Hosted by - Retina UK
28th of September 2024
Retina UK Annual Conference & Annual General Meeting (in Person and Online)
Retina UK's Annual Conference and AGM will be held both in person, and online. For more information and to complete the short registration form, visit the link provided.Hosted by - Retina UK