Alström Syndrome UK publish 'Journey to Diagnosis' report
'Journey to Diagnosis' is a report commissioned by Alström Syndrome UK (ASUK) to gain a better understanding of the journey to diagnosis of this condition, and identify recommendations to improve patient and family experiences and health outcomes.
The report highlights gaps in knowledge and areas requiring further development to enable patients and their families to receive a timely diagnosis and the support they need. You can find out more about the background to the report on the ASUK website, and read the report here.
Posted on the 30th of September 2024