Wales Council of the Blind

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World Retinoblastoma Awareness Week - 12th to 18th May 2024

World Retinoblastoma Awareness Week is the event that spreads the word about retinoblastoma (childhood eye cancer), and raises funds to support families affected by the condition.

Retinoblastoma has one of the best survival rates of all the childhood cancers. In the UK, around 98 per cent of children will survive but early diagnosis is really important. If you see one or more of the signs of retinoblastoma, be sure to get your child’s eyes checked urgently just to be safe.

The Childhood Eye Cancer Trust (CHECT) is the only UK charity solely dedicated to helping families and individuals affected by retinoblastoma. The CHECT website has a wealth of information for families and health professionals about the symptoms, diagnosis and treatment of Rb, and the support that it provides. They also run a helpline, which you can contact on 020 7377 5578 or email

You can find out more about how you can support World Retinoblastoma Week here. During the event #RbWeek will be used on X (Twitter) to share information about the condition.