Virtual Monthly Chats for adults with Bardet-Biedl Syndrome
Bardet-Biedl Syndrome UK is to lead virtual monthly chats for adults with Bardet-Biedl Syndrome, a rare, genetic disorder, which affects approximately 1 in 100,000 babies born.
The first chat will be on Thursday 16th May at 7pm. For more information, please email rebecca.perfect@bbsuk.org.uk.
Posted on the 29th of April 2024