Norrie Disease Association
Description: The Norrie Nisease Association (NDA) exists to promote awareness about and provide resources for those with Norrie Disease (ND) and their family members. It provides information & support, promotes awareness and helps to fund research into the condition. There is a charge for membership. The organisation is US-based but contact details are for the UK.
Weblink: http://www.norriedisease.org/home
Tel: 01227 638525
Email: contactnorriedquest@gmail.com
Category: Online community