Marfan and Loeys-Dietz Syndrome Online Clinics
The Marfan Trust is offering people who are newly diagnosed with the condition free one-to-one online clinic appointments with a specialist nurse.
The sessions last for 30 minutes and currently run on a fortnightly basis. The next available dates are 29th May, 12th and 26th June and 10th and 24th July. For more information and to book a free place, click here.
Posted on the 25th of February 2026