Your voice matters - Marfan Trust survey
The Marfan Trust is asking people affected by Marfan and Loeys-Dietz Syndrome and their families/carers to complete a survey about their treatment.
The results will be used to capture the big picture of care for Marfan & Loeys-Dietz syndrome patients across the country, uncover regional disparities and discover areas for improvement. You can complete is here.
Posted on the 29th of September 2025