Marfan Trust online events
The Marfan Trust runs some online events for people affected by Marfan syndrome.
The next event is Parents' Corner on Tuesday 18th November (via Zoom). It is an opportunity to meet similarly situated parents of children with Marfan or Loeys–Dietz syndrome, and discuss common concerns in a friendly, warm environment. For more information, click here.
Posted on the 24th of March 2025