Macular Society

Description: UK charity proving information, support, counselling and services for people affected by macular disease. They run a number of local groups throughout Wales and contribute to research into combating macular disease.

Weblink: http://www.macularsociety.org/

Tel: 0300 3030 111

Email: info@macularsociety.org

Category: Third/voluntary Sector

Services Provided

Macular Society Advice and Information Line

About macular disease; diagnosis and treatment; how is macular disease diagnosed?; what to do after diagnosis; treatments; navigating the healthcare system; support for you; get involved; research; professionals; who we are; work with us; shop; advice and information.

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Macular Society Befriending

It is not unusual for some people with macular disease to feel isolated, especially if it's difficult to get out and about. However, there is no need to feel alone - MS telephone befrienders can provide a regular friendly phone call, which may help to rebuild confidence and independence. Their telephone befriending service may be especially helpful if you cannot get to one of their support group meetings, but would like to talk to someone who has experience of macular disease.

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Macular Society buddies

The Macular Society can put you in touch with a Treatment Buddy who has already had treatment, for information and reassurance. If you are experiencing visual hallucinations (Charles Bonnet Syndrome) due to sight loss there is a buddy service where you can talk to someone who has also experienced visual hallucinations for information and reassurance.

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Macular Group - Swansea

Bi-Monthly (Jan, March, May, July, Sept, Nov) First Thursday of the month 11.30am at the Grand Theatre Conservatory, Singleton St, Swansea SA1 3QJ contact Kate on 01792 401 450

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Macular Society local support groups

The Macular Society has local self-help support groups across the UK. The groups vary in size and style but all offer invaluable practical and emotional support to people with macular disease from people with macular disease. Click the link below and enter your postcode to find the group near you.

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Macular Group - Abergele

Meets on 3rd Monday in the month at 1.30pm. Hafod y Park, Abergele, Conwy.

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Macular Group - Bridgend

Bridgend – Third Friday of the month 10.30am at Halo Bridgend Life Centre Angel St, Bridgend CF31 4AH contact Joy on 07985 028 212

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Macular Group - Dolgellau

Support group for people with macular disease. Meets on 3rd Wednesday of every month, at 1.30pm. Theatre Fach, Dolgellau, Gwynedd.

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Macular Group - Llandudno

Support group for people with Macular disease. Meets monthly, on first Monday of the month at 11am. Cae Mor Hotel, 6 Penrhyn Crescent, Llandudno.

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Macular Group - Aberystwyth

Group meets 4th Wednesday each month at 11am. The Marine Hotel, Aberystwyth.

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Macular Group - Monmouth

First Thursday of the month, 2pm Wyesham Christian Fellowship, Chapel Close, Wyesham, Monmouth NP25 3NN contact David on 07951 869 586

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Macular Group - Newport

First Monday of the month 1pm at the Salvation Army Hall 1 Hill Street Kingsway Centre Newport NP20 1LZ. Contact Caroline.

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Macular Group - Tenby

Last Thursday of the month, at 2pm, Community Centre Augustus Place, Tenby, Wales, SA70 7DJ; contact Val.

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Macular Group - Brecon

Second Monday of the month 10.30am at Brecon Town Council Offices (rear entrance), The Guildhall, Brecon Powys LD3 7AL. Contact Nick.

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Macular Group - Ystradgynlais

Fourth Monday of the month 10.30am at Welfare Hall, Lesser hall, Brecon Road, Ystradgynlais SA9 1JJ. Contact Adele.

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Online training for healthcare professionals

The Macular Society is developing a range of online training modules which will give healthcare professionals a greater understanding of central vision loss.

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Macular Group - Maesteg

Meets 2nd Monday of every month, 10.30am-12.30pm. All welcome. Meet at Heritage Suite, Maesteg Health and Wellbeing Centre, Hartshorn House, Neath Road, CF34 9EE.

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Macular Group - Newtown

Support group meets 1st Monday each month at 2pm. MCRA, Plas Dolerw, Milford Road, Newtown, Powys.

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Macular Group - Llangollen

Support group meets 4th Monday of every month at 11am. The Hand Hotel, Llangollen, Denbighshire.

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Macular Group - Llanbedr

Group meets 4th Thursday each month at 1.30pm. Llanbedr Community Hall, Llanbedr, Gwynedd.

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Macular Group - Welshpool

Group meets 2nd and 4th Tuesday each month at 2pm. The Catholic Church, 2 Raven Street, Welshpool.

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Macular Society All-Wales Telephone Groups

All Wales telephone calls to help those who are unable to make it to meetings in person. These will take place on: First Wednesday of the Month 11am – 12pm - English Speaking; Second Wednesday of the Month 2pm – 3pm - Welsh speaking; Third Wednesday of the month 2pm – 3pm – English speaking; Fourth Wednesday of the month 11am – 12pm – English Speaking.

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Macular Society online condition-specific communities

The Macular Society has groups which are specific to particular types of macular disease: Best's disease, diabetic macular oedema, myopic macular degeneration, punctate inner choroidopathy (PIC), and Sorsby's fundus dystrophy. Each group meets monthly. They are an opportunity to find out more about the condition, and meet others who are affected.

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Macular Group - Tywyn

Meets 1st Tuesday of every month at 11 am. Neuad Pendre, Tywyn, Gwynedd.

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Macular Group - Ammanford

Second Thursday of the month, 10.30am at Llandybie Public Memorial Village Hall Llandybie Ammanford. Contact Adele on 07494468007

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Macular Group - Pontyclun

First Wednesday of the month 2pm at The Pavillion, 52 Lanelay Road, Talbot Green, Pontyclun, CF72 8HY contact Julie Parker 07531 498 967

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Macular Group - Milford Haven

First Thursday of the month, 2pm at Milford Haven Library, Cedar Court, Haven's Head Business Park, Milford Haven, Pembrokeshire. Contact Maddy.

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Macular Group - Llanelli

Third Wednesday of the month 10am at The Lantern Centre Hall Street Church Llanelli SA15 3BB. Contact Adele.

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Macular Group - Carmarthen

Fourth Thursday of the month 10.30am at Carmarthen Bowling Club, The Green, St. Peter's Car Park SA31 1QP; contact Janice.

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Macular Group - Neath

Neath – Fourth Tuesday of the month 1pm at Neath Library Water St, Neath SA11 3EP contact Adele

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Macular Group - Caerphilly

Third Wednesday of the month at 10.30am at Caerphilly Library, 2, The Twyn, Caerphilly, CF83 1JL, in the reading room; contact Denise.

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Macular Group - Lampeter

Second Wednesday of the month 2pm at St Thomas Methodist Church, 7 St Thomas St, Lampeter SA48 7DQ; contact Diana.

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Macular Group - Solva and St. David

Second Tuesday of the month at 2pm at St David’s Drop In Centre, City Hall, High Street, St. David's, Haverfordwest Dyfed, SA62 6SD. Contact Margaret Hughes.

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Volunteer Training and Information Group

Zoom / telephone meeting, third Monday of the month at 10.30am. Contact the information line below.

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Working Age and Young People Group

Zoom meeting on the fourth Friday of the month 10.30am.

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Macular Group - Ruthin

Meet on every second Thursday of the month. 11 am at Canolfan Naylor Leyland Centre, Ruthin.

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Working Age and Young People Connect by Tech Groups

Macular Society's Connect by Tech service offers one-to-one telephone support with the technology you are using around your home. Make the most of you smart phones, tablets, laptops and computers, smart speakers, and other technology. Help with setting up Alexa, using accessibility features on devices, help with video calls, setting up a computer, Zoom and conference calls and more. Zoom meeting on the fourth Friday of the month 10.30am

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Punctate Inner Choroidopathy support group

A virtual group for people affected by punctate inner choroidopathy (PIC). The group will meet monthly via Zoom, on the first Wednesday of the month at 7pm.

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Macular Society Counselling Service

Macular Society has a team of qualified counsellors who have extensive experience either personally or professionally within the field of sight loss. This is a telephone service for anyone who has been diagnosed with macular disease. They also offer the same service to that person’s family members, in the UK or internationally. They are bound by the BACP (British Association of Counselling and Psychotherapy) Ethical Framework for Good Practice in Counselling, and fully compliant with the Data Protection Act.

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My Macular and Me Webinars

Every month Macular Society hosts two webinars to bring you closer to the experts. You will be joined by experts in macular disease who discuss the latest in treatments and research and answer your questions.

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Working Age Focus Webinars

This webinar, which takes place on the last Thursday of every month, focuses specifically on different macular conditions and issues affecting anyone of working age.

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Events associated with this provider:

13th of May 2024

Bangor Town Support Group

Second Monday of the month at 11am. For further information, contact Marian Williams on 07495 054 053.

Macular Society

Services Provided

Events associated with this provider:

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