Alström Patient Registry goes live
Alström Syndrome UK (ASUK) has announced that the Patient Registry is now live, and is asking people affected by the condition to provide information. This will be used to build a worldwide picture of Alström Syndrome, improving global knowledge and understanding and leading to an increase in interest from researchers. It is an opportunity to make a real difference to everyone living with Alström now and in the future.
For more information about the Patient Registry, click here, where you can also find out more about ASUK and the support it offers.
Posted 2020-03-23 02:18:00