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Alström Syndrome UK questionnaire

Alström Syndrome UK is asking parents of children affected by the condition to complete a questionnaire about their child's health and development. The results will be used to improve care, increase understanding of the condition and accelerate patient diagnosis.

You can find out more and dowload the questionnaire here. If you need any assistance in completing the form, please contact Liz on 07517 278946. The closing date for responses has been extended to 6th September 2019.

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