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Albinism Fellowship - (Albinism Fellowship)Service

Provides a website resource,on-line discussion forum and telephone support for people affected by albinism.
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Alstrom syndrome support group - (Alstrom Syndrome UK)Service

Provides support for those affected by Alström Syndrome, their carers and professionals working with them. This includes a forum, help with gaining access to medical assessments with doctors who have expertise in Alström Syndrome, quarterly medical screening clinics and a newsletter.
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Aniridia support - (Aniridia Network UK)Service

Aniridia Network UK provides a positive, supportive network of families, individuals and professionals in order to share ideas, experiences and give emotional support. It provides information to health professionals, patients and their families, about aniridia, the related conditions and their implications for the patient.
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BCAB Membership - (British Computer Association of the Blind (BCAB))Service

BCAB is an organisation for all visually impaired people with an interest in computers, from those using them in schools to professionals working in IT, and for professionals interested in issues related to IT and visual impairment.
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Beat the Best - (Beat the Best (Facebook group))Service

A Facebook group for people with Best's disease.
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Birdshot Uveitis Society - (Birdshot Uveitis Society (BUS))Service

BUS supports patients with Birdshot, particularly when first diagnosed and provides up-to-date information about the condition and treatment options to help empower patients and ensure they have access to the most appropriate treatment possible.
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CHARGE Family Support Group Events - (CHARGE Family Support Group)Service

The priority for the Group is to create opportunities to bring families together. If you are interested in attending an event or helping to organise one in your area, follow the link below.
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CIB Discussion Group - (Cardiff Institute for the Blind (CIB))Service

Held every Tuesday 11.15am to 1.30pm at Jones Court, Womanby Street, Cardiff. Join this group of visually impaired people of Cardiff and the Vale, for talk and support. Be involved in lively discussions about a wide variety of topics (excluding religion and politics). The group also occasionally enjoys a trip out for lunch.
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CIB Dual Sensory Support Group - (Cardiff Institute for the Blind (CIB))Service

The club meets at Jones Court, Womanby Street, Cardiff on the 3rd Friday of every month fron 10.30am - 12.30pm. Anyone with a sight and hearing impairment are welcome. Volunteers will be on hand to assist if need be.
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Coats disease community - (Coats Disease Community)Service

An online community where people can discuss issues related to this condition.
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Contact a Family support groups in Wales - (Contact a Family)Service

Groups provide parents of disabled children with essential practical and emotional support. Workshops and other events are organised.
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Deafblind Cymru - Conwy Group - (Deafblind Cymru)Service

Meets on the last Friday of the month from 11 am to 1 pm at the Ambassador Hotel, Llandudno.
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Deafblind Cymru - Rhyl - (Deafblind Cymru)Service

Support group for deafblind people. Meets on the third Tuesday in the month between 2 and 4pm at Hafan Deg, Grange Road, Rhyl.
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Deafblind support - (Sense Cymru)Service

Specialist one-to-one support for deafblind people through both communicator guides and intervenors, and outreach support to children, families and deafblind adults in their own homes
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Degenerative Vitreous Community - (One Clear Vision)Service

An on-line forum for people with DVS, the term used to describe substantial cloudiness in the ageing vitreous humourwhich interferes with the activities of daily living.
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Diabetes UK Cymru voluntary groups - (Diabetes UK Cymru)Service

The voluntary groups across Wales are run voluntarily by people living with diabetes. These groups can offer you local information and support and the opportunity to meet other people who live with diabetes.
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Disabled People Together forum - (Disabled People Together)Service

Ceredigion's first Digital Forum for disabled residents of Ceredigion. It allows people with impairments or long term health conditions to raise their concerns relating to all services provided within Ceredigion. Every quarter the forums will be used to create an Agenda of issues which will be taken to Ceredigion County Council and other public and third party bodies.
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Dystonia Society Forum - (The Dystonia Society)Service

An on-line forum where people can discuss any aspect of dystonia.
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EYE CAN - (RNIB Cymru)Service

Eye Can aims to provide social groups and activities for young visually impaired people, and to give them specialist support in a wide variety of areas including sight loss, health, education and training. The project is also providing workshops to local schools and colleges so that they are able to promote the service to their visually impaired students.
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Family support workers - (The Eyeless Trust (merged with Royal Blind Society))Service

Family support workers spend time with each family according to their needs and ensure that they have all the services that they need in coming to terms with the emotional, financial and practical issues associated with having of a disabled child. Also help older children with independent living skills.
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Friends in Need - (Depression Alliance)Service

Friends in Need is a way for people affected by depression to meet online and in their local area. It's free to join and a great way to share support.
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Fuch's dystrophy information - (Fuch's dystrophy website)Service

A website containing information about the condition, and links to a support group for Christians with the condition. Scope is unclear, but seems to be American. Note: website currently inactive.
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Glaucoma Support Groups - (International Glaucoma Association)Service

The International Glaucoma Association organises patient support groups across the UK. The concept of the groups is to allow patients to meet their health care professionals in a relaxed atmosphere, away from the time restricted atmosphere on outpatients, so the condition and treatment can be discussed in more depth. The weblink below gives details and contact points.
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ICAN support group - (International Children's Anopthalmia and Micropthalmia Network (ICAN) )Service

Provides a forum for parents of children with anopthalmia where issues can be discussed. Also has information about the treatment of the condition and medical research. Some activities (such as conferences) are US-based.
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IGA Forum - (International Glaucoma Association)Service

A on-line discussion forum for glaucoma patients and their families. The website also includes information about all aspects of glaucoma.
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Keratoconus discussion forum - (UK Keratoconus Self Help & Support Association)Service

An on-line forum where people with an interest in the condition can raise and discuss issues.
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LMBBS support - (Laurence-Moon-Bardet-Biedl Society (LMBBS))Service

LMBBS can help by putting you in touch with other families who are facing similar problems, by passing on advice which has helped others in the day to day management of thieir children, and by sending information which will help professionals in medical and educational fields to understand more about our special children.
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Local Minds - (Mind)Service

Local Minds support over 370,000 people across England and Wales. Their services include talking therapies, crisis helplines, drop-in centres, employment and training schemes, counselling and befriending. Each local Mind is an independent charity run by local people, for local people. They are responsible for their own funding and services. Mind Cymru works together in partnership with local Minds.
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Macular Group - Lampeter - (Macular Society)Service

Group for people with macular disease in the Lampeter area. Meets at St Thomas Church, St Thomas Street, SA48 7DQ on the second Wednesday of the month from 2 pm to 4 pm.
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Macular Disease Support Group Conwy - (Macular Society)Service

Meets on the first Monday of the month from 10.30 to 12.00 at Craig y Don Community Centre.
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Macular Group - Bangor - (Macular Society)Service

Support group for people with macular disease. Meets on the 3rd Wednesday of every month at Quaker House, Dean Street, Bangor. 11am-1pm.
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Macular Group - Blaenau Ffestiniog - (Macular Society)Service

Support group for people with macular disease meets on 2nd Thursday of every month, 1-3pm. Gwesty Ty Gorsaf Hotel, 1 High Street, Blaenau Ffestiniog.
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Macular Group - Brecon - (Visual Impairment Breconshire)Service

The group meetsw on the last Monday of every month. Venue: Brecon Theatre, Canal Wharf, Brecon. Time: 10.30am to 12.30pm.Contact Macular Society Regional Manager, Adele Francis.
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Macular Group - Bridgend - (Macular Society)Service

Support group for people with macular disease at Evergreen Hall, Angel Street, Bridgend, CF31 4AD. Meets on the first Friday of the month from 10 am to 12pm.
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Macular Group - Cardiff - (Macular Society)Service

Support group for people with macular disease. Meets at CIB monthly on the last Friday of the month. 10.30am - 12.30pm. Cardiff Institute for the Blind, Jones Court, Womanby Street, Cardiff CF10 1BR.
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Macular Group - Dolgellau - (Macular Society)Service

Support group for people with macular disease. Meets in the Gallery Room, St. Mary's Church, Dolgellau.
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Macular Group - Llandudno - (Macular Society)Service

Support group for people with Macular disease. Meets monthly, on first Monday of the month 10.30am - 12.30pm. Criag Y Don Community Centre, Queens Road, Llandudno, LL30 1TE.
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Macular Group - Milford Haven - (Macular Society)Service

Support group meets on the first Thursday of the month from 2pm to 4pm at Christ Church, 26 Priory Road, Milford Haven.
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Macular Group - Monmouth - (Macular Society)Service

Support group for people with macular disease at Bridges Community Centre, Drybridge Park, Monmouth on the first Thursday of the month from 2 pm to 4 pm.
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Macular Group - Newport - (Macular Society)Service

Support group which meets at the Newport Leisure Centre, Emlyn Room, 1 Kingsway on the last Tuesday of the month from 2 pm to 4 pm.
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Macular Group - Pwllheli - (North Wales Society for the Blind)Service

Support group for people with macular disease meets 2nd Friday of every month.
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Macular Group - Tenby - (Macular Society)Service

Support group which meets at Tenby Community Centre, Augustus Place, Tenby on the last Thursday of the month from 2 pm to 4 pm.
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Macular Group - Ystradgynlais - (Macular Society)Service

The group meets every month on the second Tuesday of the month. Venue: Adelina Patti Day Room, Ystradgynlais Community Hospital, Glanrhyd Road, Swansea SA9 1AU. Time: 10.30am - 12.30pm. Contact Macular Society Regional Manager, Adele Francis.
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Macular Group Llangefni - (Macular Society)Service

Group supporting people with macular degeneration. Meets on 2nd Friday of each month in Canolfan Ebeneser, Bridge Street, Llangefni.
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Macular Group Swansea - (Macular Society)Service

Club for people with macular degeneration in Swansea. Meets at the Grand Theatre from 11.30 am to 12.30 pm on the first Saturday of alternate months (January, March etc).
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Macular Group Wrexham - (Macular Society)Service

Support group for people with macular disease. Meets on the third Thursday of the month, between 1.30-3.30pm at AVOW, 21 Egerton Street, Wrexham.
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Macular Society local support groups - (Macular Society)Service

The Macular Society has local self-help support groups across the UK. The groups vary in size and style but all offer invaluable practical and emotional support to people with macular disease from people with macular disease.
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Macular Society Skype Groups - (Macular Society)Service

Skype groups give members the opportunity to talk to others affected by macular disease, without leaving home. People of all ages can take part in video or voice only calls.
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Macular Support Group Abergele - (Macular Society)Service

Meets on 3rd Monday in the month at Abergele hospital.
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Macular Support Group Brecon - (Visual Impairment Breconshire)Service

The group meets on the last Monday of every month.
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Marfan Association UK - (Marfan Association UK)Service

Provides information and a range of literature about Marfan syndrome. Members are also invited to various events organised by the association.
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Neurofibromatosis support services - (The Neuro Foundation)Service

Membership gives access to advisors with information about neurofibromatosis. There are also local groups in some areas, where you can share information.
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Nystagmus Network - (Nystagmus Network)Service

The Nystagmus Network website has a range of information about the condition. However, membership gives additional benefits such as access to experts, advice, support and discounts on NN publications.
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Peer Support & Social Groups - (Deafblind Cymru)Service

Deafblind Cymru's peer support & social groups provide those with both sight and hearing impairments plus their carers an opportunity to meet people and make friends. At regular meetings, all members are encouraged to get involved in the decision making process to determine what activities the group should do, often including social outings and arranging meetings to enjoy guest speakers on subjects of interest.
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Peer support network - (Diabetes UK Cymru)Service

The Peer Support network connects people living with diabetes, giving the chance to share information, experience and support. It is run by a team of volunteers, each with lots of experience of managing and living with diabetes. You can talk by email at any time, or phone during opening hours.
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RNIB Connect - (RNIB)Service

A growing community of blind and partially sighted people and their families, friends, carers and supporters. Joining Connect puts you in touch with this community.
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Sane Emotional Support - (Sane)Service

SANE provides emotional support and information to anyone affected by mental illness, including families, friends and carers. Their mental health support services are completely confidential. Whatever your problems or concerns, you will receive non-judgemental emotional support. Their professional staff and trained volunteers have specialist mental health knowledge; they can help you consider options for support that address your individual circumstances.
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Sight Life Forum (for BME) - (Sight Cymru)Service

Support group for people from a minority (BME) community who have sight loss, or care for someone with sight loss. The group meets on a monthly basis to share experiences, learn new things and suggest ways of improving services.
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South Wales Retina UK Group - (Retina UK)Service

Retina UK volunteers run a number of Local Groups in towns across the UK. These enable people with RP to socialise and support each other as well as raise funds and run events on our behalf.
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Support & mentoring - (Society of Visually Impaired Lawyers (SoVIL))Service

Provides support for visually impaired people working in the legal profession, including a student mentoring scheme. They also share information/knowledge about IT solutions to information gathering; accessing printed material and legal material in alternative formats.
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Support for parents of children with Rb - (Childhood Eye Cancer Trust (CHECT))Service

The Childhood Eye Cancer Trust (CHECT) is there to help you through the difficult period of diagnosis and treatment of your child and beyond, offering support throughout their teenage years and into adulthood.
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Swansea Glaucoma Support Group - (RNIB Cymru)Service

Meets at Singleton Hospital, Swansea. The group is coordinated by the ECLO and ABM Glaucoma Nurse Practitioner.
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Through Scarlett's Eyes - (VICTA (Visually Impaired Children Taking Action))Service

An on-line family support network for parents of visually impaired children, set up with funding from VICTA. A source of information and advice for parents, with the opportunity to network with others in a similar situation.
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UK Keratoconus Self Help and Support - (UK Keratoconus Self Help & Support Association)Service

A membership organisation for people with keratoconus. The website has information about the condition, and an on-line discussion forum.
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UK Wolfram Syndrome support group - (UK Wolfram Syndrome Society)Service

An on-line forum providing information and support to families affected by the condition. Some information is also available to download.
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Young Sane - (Sane)Service

Young SANE is a virtual community that focuses on mental health for people aged under 25. They want to highlight the issues that are particularly relevant to young people and talk about their unique needs. Young SANE also celebrates the ingenuity, passion and dedication of young people who have made a commitment to tackling mental health stigma, and changing mental health for good.
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