Definition: Form of deafblindness where people are born deaf or hard of hearing and start to lose their sight (with retinitis pigmentosa) in the school years.
Category: Eye Condition
Services specifically catering for people with Usher syndrome
Cymru's peer support & social groups provide those with both sight and hearing impairments plus their carer
s an opportunity to meet people and make friends. At regular meetings, all members are encouraged to get involved in the decision making process to determine what activities the group should do, often including social outings
and arranging meetings to enjoy guest speakers on subjects of interest.
Meets on the last Friday of the month from 11 am to 1 pm at the Ambassador Hotel, Llandudno.
meets at Jones Court, Womanby Street, Cardiff on the 3rd Friday of every month fron 10.30am - 12.30pm. Anyone with a sight and hearing impairment are welcome. Volunteers will be on hand to assist if need be.
Specialist one-to-one support for deafblind
people through both communicator guides and intervenors, and outreach support to children
, families and deafblind adults in their own homes
Our free Information & Advice
Line offers support and guidance to deafblind
people, their carer
s, family and friends, as well as professionals working with people who have a loss of both hearing and sight. It also provides a service to Deafblind UK's members, who each receive a phonecall three times a year for a general chat and to remind them of the support available through the service. The Information & Advice Line can also connect you to the relevant team or staff member at Deafblind UK.
Volunteer befrienders will regularly visit people with combined sight & hearing loss, helping them to do more of the things they enjoy. This could include a visit to the local café, leisure activities such as rambling, help with information technologies, assistance with simple DIY tasks or a cup of tea and chat - whatever the individual wants. The volunteers do not provide a personal care service so will not be able to help with activities such as lifting people or giving medication.
The Sense Usher
Service specialises in the field of Usher syndrome and supports people with Usher, their families and professionals. Support covers advice
, mentoring and professional support.