Definition: Changes to vision which may include difficulties in dim vision/dark, and loss of peripheral vision.
Category: Eye Condition
Services specifically catering for people with Retinitis pigmentosa
An on-line resource giving information about the care of retinitis pigmentosa
. There are sections for patients, parents, family & friends, teachers, employers and health professionals.
This telephone Helpline
is for people with Retinitis Pigmentosa
, their relatives and anyone who needs to know more about RP and how to cope with the difficulties it presents. Questions can also be sent via email to the address given below. Please remember that this service cannot provide diagnoses or counselling, and any information given is intended only as a guide.
The Retina UK Telephone Befriending Service
(TBS) links people who would welcome a friendly phone call from a trained person with knowledge of dealing with RP
, with a team of volunteers willing to share their experiences.
The TBS offers a social link on a more personal and longer term basis than the Helpline
, with regular calls being made by the volunteers for as long as they are welcomed.
Retina UK volunteers run a number of Local Groups in towns across the UK. These enable people with RP
to socialise and support each other as well as raise funds and run events on our behalf.
Service descriptions mentioning the term
If you reside in Wales, most optometrists can also offer a free eye test if:
you have an eye problem that needs urgent attention;
you have sight in one eye only;
youâ€™re registered as sight impaired
you have a hearing impairment and are profoundly deaf
you suffer from retinitis pigmentosa
you are of Black or Asian ethnicity;
your GP has referred you because they think you may have an eye problem.