Anophthalmia

Definition: Anophthalmia is a medical term that is used to describe the absence of the globe and ocular (eye) tissue from the orbit.

Category: Eye Condition

Credit: International Children's Anophthalmia Network

Source: http://anophthalmia.org/general_information.shtml


Services specifically catering for people with Anophthalmia

ICAN support group - (International Children's Anopthalmia and Micropthalmia Network (ICAN) )Service

Provides a forum for parents of children with anopthalmia where issues can be discussed. Also has information about the treatment of the condition and medical research. Some activities (such as conferences) are US-based.
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Family support workers - (The Eyeless Trust (merged with Royal Blind Society))Service

Family support workers spend time with each family according to their needs and ensure that they have all the services that they need in coming to terms with the emotional, financial and practical issues associated with having of a disabled child. Also help older children with independent living skills.
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Eyeless Trust grants - (The Eyeless Trust (merged with Royal Blind Society))Service

The Eyeless Trust offers modest grants for families and children with anophthalmia, microphthalmia or coloboma. These are arranged through The Family Support Worker, and each year a large number of families benefit for a wide range of needs. Grants can be used for practical help, recreational activities and holidays.
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Grants from MACS - (Micro and Anopthalmic Children's Society (MACS) )Service

MACS gives grants to cover the cost of activities or equipment needed by children born without eyes, or with under-developed eyes. You must have been a member of MACS for at least 6 month to apply.
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MACS family helpline - (Micro and Anopthalmic Children's Society (MACS) )Service

Telephone helpline offering advice and support to parents of children born without eyes or with under-developed eyes.
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Activities for young people - (Micro and Anopthalmic Children's Society (MACS) )Service

MACS organises sailing trips and adventure weekends for young people with MACS conditions.
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