Definition: Anophthalmia is a medical term that is used to describe the absence of the globe and ocular (eye) tissue from the orbit.
Category: Eye Condition
Credit: International Children's Anophthalmia Network
Services specifically catering for people with Anophthalmia
ICAN support group - (International Children's Anopthalmia and Micropthalmia Network (ICAN) )Service
Provides a forum for parents of children
with anopthalmia where issues can be discussed. Also has information about the treatment of the condition and medical
research. Some activities (such as conferences) are US-based.
Family support workers - (The Eyeless Trust (merged with Royal Blind Society))Service
Family support workers spend time with each family according to their needs and ensure that they have all the services that they need in coming to terms with the emotional, financial and practical issues associated with having of a disabled child
. Also help older children with independent living skills.
Eyeless Trust grants - (The Eyeless Trust (merged with Royal Blind Society))Service
The Eyeless Trust offers modest grants
for families and children
. These are arranged through The Family Support Worker, and each year a large number of families benefit for a wide range of needs. Grants can be used for practical help, recreational activities and holidays
Grants from MACS - (Micro and Anopthalmic Children's Society (MACS) )Service
MACS gives grants
to cover the cost of activities or equipment needed by children
born without eyes, or with under-developed eyes. You must have been a member of MACS for at least 6 month to apply.