Marfan Trust
Description: Provides information and a range of literature about Marfan syndrome. Members are also invited to various events organised by the association.
Cost: There is a charge for membership of £15 per year (at Feb 2013).
Email: info@marfantrust.org
Telephone: 0333 011 5256
Weblink: http://www.marfantrust.org
Type: Support Group
Coverage: UK-wide
Provider: Marfan Trust